Advent vs. Orlando Health vs. Nemour’s for medically complex infant?

Title, basically. We have infant twins one of which is medically complex (hypertonia, dysphagia, possible genetic condition we’re waiting on tests for.) We delivered at AdventHealth, our pediatrician and all specialists are AH, and we’ve had two hospital stays at AH.

The hospital staff have been great, the outpatient specialists have been just okay, but our pediatrician has been really disappointing. Now that we’re mostly outpatient we feel like our “team” isn’t really working in sync and our pediatrician is totally disinterested in supporting us or our kids - just in and out as quickly as possible.

If you’ve been in this type of situation before, did you feel like you got better care from Orlando Health or Nemour’s primary/pediatrician and specialists?