Desperate for answers

Hey, I’m in my late 20s and I have been dealing with hip dysplasia my entire life. It was caught as a child and my parents were told I’d grow out of it. Now that I’m older it’s catching up with me and in the past year I’ve lost a lot of my quality of life. I can’t do anything I enjoy anymore, I need help doing basic chores, I can’t always get up the stairs to my bedroom and when I do sleep it hurts all night most nights. I don’t have “good” days anymore. My job is forgiving but also doesn’t have benefits and I think I’m becoming less and less useful there too. I wake up in pain and dreading the next day. The last doctor I was able to see before I aged out of my parents insurance told me that “as much pain as I can handle is what I’m gonna be able to do” and to take ibuprofen when it hurts (every day? Forever?) I am at a complete loss, is this just my life now? What do I even do? If I were somehow able to pay to be seen out of pocket, would they even help me or would I leave with nothing like last time?