r/POTS•
lovinginlofi

How far do I go to feel validated in your diagnosis?

Diagnostic Process

Hey everyone, I had a doctor appointment yesterday that I am having feelings about and would love to talk it through with some people who are probably in the same boat as me. I have been dealing with a plethora of health issues my whole life and recently found out about POTS, at which time everything clicked into place and I started looking into getting a diagnosis. I talked to my GP who recommended me to a cardiologist. I wore a holder monitor for two weeks (Zio, where you can push the button and log symptoms) and went into my appointment yesterday. During the appt we did an EKG (came back normal) and they took orthostatic vitals. The doctor looked at the vitals and pretty much said, “yup, this is consistent with POTS.” And the wrote it on my charts which I can view online. But, they mentioned it wasn’t an official diagnosis because it wasn’t a tilt table test and that there was no reason to do one of those since I don’t experience fainting. I feel a little…incomplete. I am wondering at what point I stop pouring money into this journey and accept that I have POTS without a formal diagnosis. At home tests point to POTS, the doctor all but told me I have POTS, my charts say I have POTS and the cardiologies even prescribed me beta blockers so I am being treated for POTS. Is that enough? Is it worth the extra money to get a formal diagnosis? Or can I just rest easy knowing I have this thing that I think has been effecting me for years and move on with treatment. What are your thoughts? Would you stop here and feel satisfied or would you push for the full diagnosis?

Posted Sep 10, 2026, 7:22 PM UTC

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