living in PURE hell and agonizing misery everyday for a year. i'm exhausted i just need advice or someone's story for some hope :(

hey i'm desperate for any advice or to hear what's helped for other people. i am of course not looking for a diagnosis, but rather to see if my symptoms maybe sound like something you have gone through. i've been trying to get diagnosed for the last year. everyday has been a fight with my body. im so horrifically miserable and constantly humiliated by how my face and body look. please please please read and if you have any advice or think this sounds like something you have been through i would love to hear your story and see what helps you. i'm so desperate to be heard or related too. i'm tired of feeling crazy and being medically gaslit.. it's making me question if i'm sick. but i know i am, i feel it, i see it. my life has been awful since.

will try to keep this short.. last October I started getting this "heat" issue. basically doing anything physical, as little as braiding my hair makes my face severely red welted rashy type look, also my ears, neck,and it's BURNING hot, it, like hurts too?.. My job is physical and our AC has been broken alllll summer. so every day is so miserable. every time I do something sort of physical! I can't even vacuum the house, my face just flares up with this massive sort of heat rash. on top of that it makes me feel genuinely ill. I don't know how else to really explain it just very ill. headaches and consistent migraines behind my forehead that make me dizzy and nauseated.

the main things that trigger me daily are warm or hot rooms, non-ventilated rooms, physical exercise from as little as braiding my hair to flipping deceased bodies (i work in death industry). basically the harder the "workout" the worst my flushing it's really localized to my face, ears and neck, but my arms get it sometimes and weird like my legs, it depends what i am doing. if I rub my eyes/face/ears that'll trigger. and God forbid I get a little emotional. That's a big trigger. i have blood pooling in my legs when i stand flat too long sometimes, intense itching, red patchiness up to my calves (i thought every human experienced this until recently people have been telling me otherwise). my hands and feet swell and my knuckle joints are red and hot. my body can be cold and ill still flush severely. i've been sick the last couple of days and it's been so horribly miserable. I mean I can't physically explain the severity... i cannot live like this any longer. for posting reasons I'll leave it at that. i'm not going to break rules and post photos either but trust me when i say it's VERY VERY bad.

have u gone through this? any advice? any help? what's your story? one of my doctors (one who FINALLY listened to me..) started me on allegra x2/day. it's literally only been a week. I thought I saw some help, maybe it was in my head, but i also then have been really sick and it went out the window.

i've been advocating for myself for a year. I've been to so many specialists. blood work. urine work. doctors shrug, they laugh about it, don't listen. even when i'm in tears begging for an answer, a referral, anything! my current doc is trying to get me into allergy, but they are not taking me seriously at all, even just the front desk schedulers.

i wish my above description could explain the horrendous last year i have had. i can't wear makeup, do my hair, wear certain clothes (i'll get too hot). i've isolated, lost friends. it's horrible. idk what to do for myself anymore. :( </3