Curious if other hypermobyle people experience touch aversion?

Discussion

Hey so, recently found out I'm hypermobyle thanks to my neurosurgeon. I'm recently doing a lot of research and realizing I share a lot of behaviors with other hypermobyle people like the way I sit or sleep, or bump into things, etc. Now a huge problem I've had over the last few years is I don't like being touched. I'm the only one in my family and social group like this. I don't enjoy being touched by people almost all the time.

The other day I was discussing with my dad because once again I was in pain and he offered to pick me up and carry me to my room (we've had this convo a few times before) and I said "I don't want to cause being held is painful too", cause I feel like my weight pulls me down and it's painful, and he looked at me weird. Then I realized if someone held my hands for too long, it also became uncomfortable to the extreme of pain. So now I'm wondering, is touch aversion a part of being hypermobyle for some people?

To clarify not all touch is immediately painful for me, but it is 95% uncomfortable. It gets paiful especially if maybe a part of my body is being held in one position or held up so my weight pulls it down

Posted Sep 12, 2026, 2:20 AM UTC

3732
Loading comments…