In my feelings… pissed but lost 4# since August 24th…

So today was the one on one with the surgeon. I was so excited this morning! I was very upfront and honest about all my medical because I’m medically complex. Told everyone what surgery I am interested.

Surgeon comes in and sit for 10 minutes and says I recommend that you do the sleeve because with NF2 and taking medication. Then says oh and you need cleared by an ENT and Cardiologist. Then walks out. Umm hello both my Brain Surgeon and Neuro Oncologist said that RNY will not effect my NF2 and I don’t take medications for it and never have and don’t plan on it cause there’s only 4 temporary fixes:

1. wait and watch(regular routine MRI)
2. radiation
3. chemo
   4)brain surgeries.
   Well I only do 1 and 4.

So once surgeon walked out room I said to nurse what happens if I’m not interested in a sleeve? Nurse said go get cleared by cardiologist and ENT and we will bring you back in to sit and you can talk to the surgeon again.

I have to pick my battles and choose which ones I wanna fight and doing a sleeve because that’s what surgeon recommended is not a battle I’m interested in fighting and is an unnecessary surgery when I still have 3 brain tumors and will need another brain surgery or multiple more on top of 2 I already had. My brain surgeon and Neuro Oncologist have been part of my NF2 Care Team since I was DX which is 15 years and counting. I think they both are very well knowledgeable about NF2 and my situation.

I feel like now it’s riding on this ENT that the surgeon referred me to.

I was going to go and eat unhealthy cause I was pissed but instead I came home and ate 4 Wasa Light Rye Crisp with Ratio Protein Yogurt on top of them!

Just needed a place to vent.