Spina Bifida closed (manifestation)

Super hard to find any doctor who actually cares about this. Didn't used to be this way, but as a young child, but now I will have to travel to a different state for the possibility of a qualified doctor. Mine went to heaven in the early 2000s. What a catch 22. LOL. I love it. Try and explain it to a basic spine doctor, pt, PHP and they are like DUH deer in headlights. But they too will manifest something up, to justify the doctor bill they are about to charge. Now I'm 54 and have no more compensating body parts to drown it all out. LOL. I've heard some crazy conclusions. Can't put nothing past me anymore. Yet somehow, I need to find relief.