Does anyone here have a disability?
I have bronchopulmonary dysplasia. I was supposed to be born in the middle of January but i was born at the end of November. My lungs were under developed and the pressure from the oxygen machine destroyed my lower lung tissue. I Stayed in the NICU from when i was born to April 14th of the following year. I had Wolf Parkinsons white syndrome which is a issue where the heart races, which ended completely by the age of around 3 due to medications. I had another heart condition which resulted in Padal Ductus artiousis heart surgery a few days after i was born. I had respiratory distress syndrome. Bronchitis, Pneumonia. I had congestive heart failure after i went home from the NICU for the first time. I am now 32. I take 2 inhalers a day. I wear a oxygen machine every night while i sleep. I sometimes wear it during the day depending on the weather. My lung function has not changed since i was born. I have a horizontal scar from the center of my chest to the edge of my back. I was tested for a lung transplant back in 2002-2005 but i said no to the transplant. I'm still alive today! Just last year i walked over 2 miles at a festival without my portable oxygen. When doctors look at my lung xrays they say i shouldn't be able to do basic day to day functions without portable oxygen like walking up stairs, showering, light house work. But i can.
Posted Apr 15, 2016, 2:15 AM UTC · edited