Portacath?
I'm newly diagnosed with stage 4 cancer. They said they can't determine the specific type because they don't know where the source tumor is. But they said all gut cancers are treated the same way.
I'll be getting a portacath put in next week and I'm pretty scared. I'm only 26 and while I've had many surgeries this past year, I'm not sure what to expect from this port or from chemo. They told me they are going to start out slowly with the chemo because I'm so weak (down to 88lbs).
Is it normal to not get a prognosis either? I thought they would be able to tell me my chances but they said they simply don't know. I'm assuming stage 4 means it's pretty serious though.
I was just hoping to hear from some people who have experienced having a port put in. Is it very painful? Is there anything special I need for when I shower to keep it dry? Can I accidentally damage it in any way? And I think they said I'd gave a fanny pack so I'm guessing the chemo will be pumping into me slowly over a couple of days?
I'm sorry about all of the questions I'm just feeling very overwhelmed and scared and I was hoping people with more experience could help me wrap my head around all of this.
They said the cancer has become kind of like concrete, spreading out and hardening parts of my bowel. When they found it during my full hysterectomy, my ovaries were spongy and stuck to the walls and my uterus was hard as a rock and enlarged. They couldn't remove my cervix because it was completely cemented into place.
Has anyone had anything like this or know someone who did? They said the chemo they are starting with won't make me lose my hair so it's a gentler kind of chemo? Should I be pushing for a more aggressive approach? What should I expect from chemo?
Is there anything I should purchase ahead of time that will help me with the struggles to come?
Thank you for your time and your support. I never thought I'd be facing something like this so early in my life. Anything you have to offer knowledge wise is priceless. Thank you again. ❤️
Posted Jul 21, 2017, 9:36 PM UTC