What kind of advice would you give a young man looking to address physical issues that doctors do not seem to care about because i'm not dying, just seeing declines in life quality and strength?
In short, I'm experiencing unilateral strength loss. It's been months and months where doctors don't seem to care much now that stroke has been crossed off the list of possibilities. What kind of specialists would I see besides a rheumatologist or a neurologist? How do I explain the issue? What kind of things can I say to drive up some interest on their part on helping me get back to optimal?
Posted Jan 4, 2019, 11:46 PM UTC
See a rheumatologist and neurologist as you mentioned, and the in the meantime a physical therapist. I am not a doctor but have been through similar problems and sometimes GPs, ortho, sports med, etc. type of doctors might not take notice until you go through a round or two of physical therapy and the problem continues or worsens.
I've seen both. The rheumatolgists keep reordering blood work. An EMG seems to show i'm fine. I did physiotherapy for a long time to deal with neck and upper back pain, as well as a round of massage therapy. These helped with pain and discomfort but the strength is still gone. I am also getting conflicting opinions from these people which makes things harder.
Normally I would think my GP would be the person to help push things along but she has no expertise in these things and is the one who suggested physiotherapy and an EMG. A CT scan shows that my neck is fine. I'm trying to convince the rheumatologist I saw last that the neurologist suggested it's a soft tissue problem. His decision was to get more blood work done rather than ultrasound.
How did you make your case to these professionals?
I kept consistently seeing the sports medicine/Ortho people and doing PT. After seeing problems with a number of joints they started looking for some systemic stuff before my rheum did.
What's your GP specialty?
Her specialty is family medicine.
I've never seen a sports medicine doctor. I'm not sure it's covered under my insurance, either. I guess I should try it
I would see if she can refer you to sports med or PT to work on strengthening, and perhaps refer you to a different specialist to check out other possibilities (endocrinologist, internist) diagnostically. If you go to PT continuously and things continue to progress, doctors tend to take notice. I got the vibe after going back to the doctor to be prescribed a second round of PT, that everyone just assumed I hadn't kept up with an exercise routine. After going back to the doctor _again_ with even more issues, they started ordering more tests.