Has anyone here ordered their own lab tests?

My doctor won't order any testing at all until I've had another miscarriage. That's crazy to me - by the time I've had another miscarriage at least 6 more months will have passed! If blood tests show something abnormal, there might actually be something I can do! She won't even really talk about letting me pay for the tests myself, she just keeps insisting that they "too expensive" and the insurance won't cover them.

Has anyone used any of the sites where you can order your own lab tests and take them to a quest or labcorps site to have blood drawn? (I'm in the US - Massachusetts to be specific - the laws seem to vary state by state.) What site did you use, what tests did you choose? I'm considering Personalabs and wondering if anyone has any experience. The tests are kind of expensive, but it's worth it to me.

Posted Jul 20, 2019, 1:02 PM UTC

327
lkatj3 MMC, 2 CP TTC #1 since 2017/09•

Is this an OB? Or a family Dr? Some of the tests you can understand them not doing but there are others that aren't directly fertility tests that your insurance should cover. You could at least have thyroid and insulin resistance tested as both of those things could impact pregnancies. If it was an OB could you just go to your family dr and see if they will test those couple things?

8
ithinkOP•

It's an OB. I was skeptical too that these tests couldn't be run - none of these tests seemed specific to TTC! I'll talk to my family doctor and see what they say.

1
heykatydid35 | TTC #1 | MMC 3/19•

My PCP ran thyroid tests for me and it was really quick - got the results back same day. I hope your family doctor can order things like that for you!

2
scientistsaysTTC #1, cycle 19, MMC Nov18, BO Apr19•

I used healthtestingcenters.com to order myself an HCG blood draw at Quest when I was waiting for an US to confirm my blighted ovum. It was super easy. I paid for it out of pocket, but submitted it to insurance and they paid me back for some of it.

What tests would you be looking to get? Every insurance is different, but mine covers anything to diagnose infertility (but not treat it) or recurrent loss, so I was able to get CD3 testing covered through my OB.

5
ithinkOP•

Not totally sure. My OB said they would test for "autoimmune disorders, clotting disorders, and thyroid disorders", but only after two miscarriages.

1
scientistsaysTTC #1, cycle 19, MMC Nov18, BO Apr19•

Well if you want a reason not to test, I've had all of those tests done after 2 losses and everything came back normal. Just some food for thought. Good luck to you.

2
ithinkOP•

I understand that it's possible (or even likely!) that the tests won't turn up anything. But the voice in my head keeps saying, "what if there IS something you can do?" It's giving me something to focus on while I wait. And if everything comes back negative, I'll feel more optimistic to keep going.

There are some limits though - like I'm not going to spring for the karyotyping.

1
scientistsaysTTC #1, cycle 19, MMC Nov18, BO Apr19•

Totally valid - and as frustrating as it is to get normal results back bc it doesn't help explain anything, it does make me hopeful and provide some assurance that I'm likely to be successful in the future.

1
SJCmom•

I’m sorry that is really frustrating. I don’t get this mentality either to wait for another miscarriage before more is done. Time to see a reproductive endocrinologist then. The dr will run a battery of tests - thyroid, blood clotting disorders, vitamin/mineral deficiencies, hormones, etc. I have never had “fertility services” covered by my insurance so I pay out of pocket anyway.

4
ithinkOP•

Supposedly my insurance will cover "diagnosing infertility" but not treating it. I was worried that a reproductive endocrinologist would tell me to wait just like the OB has. But maybe it's worth looking into.

1
YouLostMyNieceDeniseTTC#1, Cycle 11, 1 CP•

There was an AMA on one of the TTC subs the other day from Modern Fertility, which is a company that lets you do some fertility testing for $159. You can either schedule a lab appointment, or do it at home.

The only thing that I’m hesitant about is that it has to be done on CD3, and they don’t take returns. I emailed them and they said that I could order it on CD1 and use 2-day shipping to make sure it arrives by CD3. I just don’t want to order it during the TWW and then end up not needing it if my period doesn’t come.

I decided not to do it yet, because I’m not comfortable doing it at home, but the lab in my town doesn’t have hours outside of my work schedule (I’m a HS teacher, and really hate to miss a class period unless it’s necessary). But I may change my mind in a few months, so I’m glad the option is there.

3
heykatydid35 | TTC #1 | MMC 3/19•

Quick drive-thru to say hello, fellow teacher! And also - that's really interesting they say it has to be CD3. Next cycle, my fertility specialist is running tests but they said it's CD 2 thru 4. I wonder if it's different in-person vs at home?

2
Cejames2MMC at 16 weeks, 5/24/2019•

Hello! I ordered Modern Fertility in February to do on my cd3. I have PCOS, so I figured I needed to know what was up. I did end getting pregnant that month, so I was not able to use it. I contacted them and they said it does not expire for two years, so I could do it after the pregnancy.

Since I had a miscarriage I ended up being able to do it in July. The results were interesting! They test a lot, and give really good info about what is low and normal. I found out about two things that are wonky with my hormones and I feel like it was good info to know! They give you the document with your blood results that you can take to he doctor if you want!

Hope this helps!

2
ithinkOP•

Thanks for the pointer to modern fertility. $159 seems like a steal vs. ordering all those tests through a different site.

1
fertthrowaway38, TTC #1, IUIs & IVF, MMC 3/17, MMC 8/17•

Yes. Where I lived (Denmark) they would do zero testing until you had 3 miscarriages and THEN waited like a year on the waiting list for the only RPL clinic in the country. I was desperate after my second MMC at age 38 while also having infertility and doing treatments. I ultimately found a private infertility clinic that was a chain hq'd in Germany and they had their own private blood testing facility in Germany. Otherwise it was impossible because blood testing in Denmark was heavily nationalized and everything had to go through central channels. I paid out of pocket for a basic blood clotting panel (APL, lupus anticoagulant, homocysteine level, INR, basic set of thrombophilias), a bit of thyroid tests since my TSH had been as high as 2.9 before, and we did karyotyping for me and my husband. Turned out I have a thrombophilia, protein S deficiency. My third pregnancy on Lovenox was successful (and I was basically only getting pregnant on aspirin which I happened to start on my own during the infertility treatments).

If you can afford the tests, there is no downside to just checking for these things before you have to suffer multiple miscarriages. It also then made sense that a medical mystery from my past was a misdiagnosed DVT while on a type of birth control pills bad for clots in my early 20s. They were going to do surgery on the blood vessel in my shoulder before it spontaneously went away (typical of a thrombosis - I'm lucky to have not gotten a pulmonary embolism). All women should be checked since hormonal birth control is so common and the women who get clots all have blood clotting disorders and are prone to it (and could likely have problems in pregnancy). Although you can also easily not have ever had a clot before because it's a totally random event and some pills are worse than others with causing it. I was on different pills for over 10 years and only had this happen once.

My case is umusual and most likely outcome is nothing will be found as a possible cause. But at least you can check some boxes off. I was really surprised they found something from mine and it was a lifesaver literally.

3
ithinkOP•

These are the kinds of stories that make me want to push for the testing. I know that it's likely that it won't find anything, but when it does... the issues are very fixable.

1
amugglestruggle•

I think it's time to get a new OB. I miscarried Feb 2018 and this past April I was (and still am) getting full rounds of testing. Maybe it helps that my doc is a fertility specialist and pretty fricken awesome and understanding. It's SO important to have one who listens to you and gives you all the info you need.

2
ithinkOP•

The thought crossed my mind, but I wasn't sure how to screen for OBs who would be more aggressive. But you've given me something to go off - look for fertility specialists. Thank you!

1
amugglestruggle•

I honestly just went through the list of doctors my insurance had and looked for an old man 😂 as odd as that sounds. I wanted someone calm, level headed, with years and years of experience and good reviews, so Yelp was my best friend. You need someone who doesn't ignore your concerns. My doc is soooo responsive and always puts me at ease and actually cares about what I say. He only asked that I try for a year before starting testing, which I did. Now we're just going step by step as needed.

2
Heartsgrizzlybear•

To answer your question, no. My OB ordered my labs after two miscarriages due to new research regarding 2 vs 3 miscarriages in regards to recurrent pregnancy loss. and also, I’m in the military so in order to be treated I have to be diagnosed with something. After the first, both doctors I saw were confident I would go on to have a successful pregnancy, so much so that when I came to the clinic with moderate bleeding I was sent home by a nurse saying it was probably implantation bleeding (spoiler alert I was miscarrying again.). This is likely because STATISTICALLY Women will go on to have a successful pregnancy after one miscarriage - the odds of having two in a row are between 2-5% depending on the study. Additionally, the tests only identify causes in about 50% of losses, my doctor was very up front about that. Furthermore, if it’s a clotting issue, apparently if you present with signs of a clotting disorder you have to re-test in 12 weeks, aka another three month delay.

All that to say, I’m sorry your doctor is being uncooperative, I wish you the best on your journey.

2
ithinkOP•

I'm sorry for your losses. I also had some "don't worry about the bleeding" with my miscarriage and I think it's making it hard for me to trust doctors when they say not to worry.

1
JubblyJams37|TTC #1|1 MC 1 CP•

I actually just ordered a retest of my tsh through one of those sites. It was borderline (2.510 & they want it under 2.5) when my doctor tested it and offered therapy for it. I wanted to check again before I decided to treat or not. I figured it is cheaper and easier to just order the test myself online ($40!). Overall, very easy! I just go to the local LabCorp location and give blood, which is also where I would be sent if my doctor ordered it.

1
toxxikk•

I’ve had three losses with less-than-attentive providers and ended up needing to do labs myself. I’ve used AnyLabTestNow, PersonaLabs, and some other local one. I’ve use the first two multiple times, picked by which one had the better deals/promos at the time and/or better lab hours for my needs. I LOVE getting a copy of my own results in my email the next morning, versus waiting over a week to get anything back from my provider. I’ve only tested HCG so far. But now after my third loss, I’m eyeing the fertility testing. Might look into this Modern place mentioned above.

1
toxxikk•

I’ll add I don’t have insurance and even when I did it didn’t really cover any of that. So it was much cheaper for me to go through the labs myself versus the upcharge going through my provider. I did find a midwife who let me pay her at-cost price of $15 per HCG quant. I got three of them. 😬

1
yawaworht98765432101 MC, 12/18; 1 TFMR 4/19; dominant genetic disorder•

How many miscarriages have you had?

0
ithinkOP•

Only one so far. The OB is definitely making me feel like I'm overreacting. (And maybe I am! This subreddit has really put things in perspective for me.)

But I'd do anything to avoid having another one, even if "lots of people" get pregnant easily the second time around and the chance is low that we find something that improves my chances, y'know?

2
yawaworht98765432101 MC, 12/18; 1 TFMR 4/19; dominant genetic disorder•

30% of known pregnancies end in early miscarriage. It’s extremely common and very likely that it was an anomaly. The standard is performing tests after 3 for women under 35 and after 2 for women over 35. I had a miscarriage at 7 weeks after the heartbeat was normal at 6 weeks. So so many people I know have had them. It’s really common and rarely means something is wrong with you.

1