Developmental Trauma Disorder or Autism? Or both?
I'm halfway through the book The Body Keeps the Score and now I'm noticing a huge amount of overlap between Developmental Trauma Disorder (childhood equivalent of CPTSD) and Autism.
I'm 35f and have a diagnosis of Autism Spectrum Disorder Level 1 (formerly known as Asperger's Syndrome). I see a child psychologist because there are few therapists where I live who are trained in autism. Unfortunately, I don't believe she's cross trained to treat CPTSD, so often we're focusing on managing symptoms rather than getting to the root cause if that makes sense.
I've always wondered if it's possible my autism symptoms are caused by early trauma. My backstory is that around the time my mother found out she was pregnant with me, my father was diagnosed with terminal cancer. My mother was young, poor, came from a trauma background, and told me she cried every single day of the pregnancy. My father passed when I was 2 years old. As a baby, I changed caregivers frequently and my primary babysitter's husband also died, and unexpectedly. My mother went on to marry an alcoholic and the remaining years of my childhood were highly stressful and marred with abuse.
I've tried to google the association of trauma and autism with mixed success. There are some scholarly articles out there about this intersection, and there's a bit of a "chicken or egg argument" regarding causation. But generally I've noticed there seems to be a reluctance to look at the parents' role when it comes to autism due in part (I believe) to a desire to move away from the "refrigerator mother theory" of the 1950's which blamed parents' lack of warmth for autism in their children. I've been active in the r/aspergirls community (a great sub) and noticed a fair amount of trauma referenced from posters in there.
This research paper, "Autism as an Infantile Post-Trauma Stress Disorder", is what ultimately got me thinking more about my possible PTSD origins:
So taking a look at both....
DSM 5 Diagnostic Criteria for Autism:
A. Deficits in social communication and interactions B. Restricted, repetitive patterns of behavior, interests, or activities (repetitive motor movements, rigid thinking patterns, fixated interests, hypo- or hyper-reactivity to sensory inputs) C. Symptoms must be present in the early developmental period D. Symptoms cause clinically significant impairment of current functioning E. Not better explained by intellectual disability or developmental delay
Developmental Trauma Disorder (borrowed from Wikipedia):
- Problems with relationship boundaries, lack of trust, social isolation, difficulty perceiving and responding to others' emotional states
- Sensory-motor developmental dysfunction
- Difficulty identifying and expressing emotions and internal states and communicating needs and wants
- Depersonalization, impaired memory
- Problems with impulse control, pathological self-soothing, sleep problems
- Difficulty regulating attention, problems with executive functioning
TLDR: Anyone else out there with CPTSD and an Autism diagnosis? Your thoughts on this?
Posted Dec 17, 2019, 9:57 PM UTC · edited
My kid is autistic so I’ve read a little about this. Here’s my very very layperson take on it - the externally visible symptoms of autism may be caused by other things, but the internal things won’t be.
So you might have social difficulties that are caused by early trauma, but if you can hear a fluorescent light that’s probably autism. You might feel cramped and nervous in crowds, but if the smell of strong perfume is severely distressing, that’s probably autism. You might like things to be a certain way in your home because of the way your parents punished you if things were untidy, but if you need all the jars to be organised by colour that’s probably autism.
There’s a sensory aspect to autism that IMVHO isn’t replicated in other disorders, and that’s where you can find the difference.
Wait...I can hear fluorescent lights very clearly. That's not common? That's an autism symptom?
its an autism symptom! with autism sensory processing is different and things that are fairly normal can be much more intense (ex. hearing fluorescent lights or other tiny sounds, hating certain fabrics, noticing textures in food more strongly, being very sensitive to smell, etc.). this can also be present in other conditions but autism is one of the most common causes and its a primary symptom of it.
Thanks for sharing. I didn't know about the fluorescent lights I thought it was normal they made a sound, I also don't like strong perfume and have same experience with feeling cramped in crowds. My dad doesn't believe I have ASD but that's one element of my diagnosis, I'm glad I came across your post.