Brivlera question
Is anyone taking Brivlera to treat tonic-clonic seizures and how effective is it for you?
Posted Aug 19, 2020, 6:59 PM UTC
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Is anyone taking Brivlera to treat tonic-clonic seizures and how effective is it for you?
Posted Aug 19, 2020, 6:59 PM UTC
My daughter takes it as an add-on medication to her Lamictal. She started having breakthrough tonic-clonic and absence seizures last fall, and upping her Lamictal didn't help.
She's only on 75 mg of Brivlera, but she hasn't had a seizure since she started in it November, so for her it works well.
my neuro wants brivlera to be my only medication because she doesn't like my Dilantin
If Lamictal stops working for my daughter we will definitely try using Brivlera as her sole medication. It seems to be really powerful, and it stopped all her seizures right away.
It is definitely worth trying if your neuro suggests it.
what about side effects?
It's a similar medication to Keppra, but much more targetted, so you can take less medication, so fewer side effects.
At the beginning, it made my daughter very sleepy, but that went away over time.
Other than that I haven't noticed other side effects, other than the usual ones that her Lamictal (and probably all AEDs) cause - tiredness, a bit of brain fog, etc.
If you search "Briviact" in r/epilepsy you will see more posts from people who have taken Brivlera.
Briviact seems to be the more common name (especially in the US). I'm guessing you are in Canada, like us :)