IAmA relative of a progeria sufferer and have first hand experience of living with and heard of the treatment to do with it. AMA

Recently I have watched a documentary on the condition progeria which affects one in a million newborns. Ever since I have been interested in what it is like being someone with this condition and what it is like living with and getting used to someone with it. There is also a new treatment to do with curing it which has incited even more interest. I thought redditors might be able to sate my curiosity. Thanks.