How strong are my attacks? Is this the norm?
Hello, I got diagnosed in November. I have made lifestyle changes, taking betahistine... less sedentary lifestyle, improving diet etc etc.. all work in progress and getting better over time.
So I have managed to get my attacks roughly down 1 to every 2/3 weeks. However when I do have them I no longer have mild attacks.
I generally wake up feeling off, then if I eat / drink something that kicks off my attack. I had to lie down at 9:20. My attacks start off with 2/3 hours of severe vomiting. During this period I am moving back and forth from bed. During half of this I just lie down on the bathroom floor, I end up roughly vomit every 5 mins I think? I then have sporadic vomiting / dizzyness / vertigo last til like 18:00.
Then i have a cool off period til around 19:00/20:00. Til majority of my sympons are gone. I can finally eat after 20:00.
I generally have a lot of pain in my legs, abs, and other areas in my body for a few days. I weighed myself at the start and end of the attack before I ate. I am normally around 73-74 kg. I lost 1.25kg in the space of 10-11 hours.
My last attack was Tuesday, I am generally able to deal with having a severe attack even though I feel like I am about to pass out at the worst of it but this last attack has made me readjust my expectation as such as going on holiday trips for now. So I am trying to find out more, do my best to figure coping methods etc before I commit to anything like a holiday.
Posted Jul 25, 2021, 7:43 PM UTC