First off - I just want to say that every single person's body is different. 
This is my experience with everything and may sound or be different amongst the rest of us.

I want to relay some of my knowledge along with the directions and approaches that I have taken.

I never had erectile dysfunction issues up until last year.  It hit me like a ton of bricks. I did my best to research and find out every little bit or piece of information.  I lost someone I loved dearly because of this, but I also lost who I was throughout this process.

I am 11 months in.

This is 11 months in pain - physically, emotionally, and mentally.

Symptoms:
Severe ED
Pain in testicles
Pain in perineum
Premature ejaculation
Retrograde ejaculation
Constipation
Pelvic Floor Dysfunction (Many PT's believe that Pelvic Floor Dysfunction causes PNE - common misconception in the states - Compression of the nerve causes the pelvic floor to go INTO dysfunction.
Atypical urinary stream
Lower abdominal tension
Overall diminished orgasm
Overal diminished sensation
Numbness that lasted for 6 months - now semi numb


At the beginning it felt like a pinch in my left testicle.  Initially ignored thinking it was nothing and will go away.  Eventually, it turned into full on numbness. Each and every time I masterbated or had sex the pain would get worse and the sensation less so. I was sent to a Uro who diagnosed me with Orchalgia (general nonspecific pelvic pain that comes about with old age). This is a BS diagnosis - it's a copout. He gave me antibiotics for 3 months in which I was non responsive to.  I saw a neuro which indicated that scans were normal.  Uro after Uro and Doctor after Doctor no one was giving me answers.  I started looking at alternative methods to see if those approaches would help.

Who have I seen for this issue:
4 Urologists (1 top Uro is Pittsburgh PA)
Pain Doctor
Neurologist
3 Plastic Surgeons specialized in Nerve Surgery
Chiropractor
Acupuncturist
Body Work Specialist
2 Pelvic PT's

What are procedures that were done:
CT Scan
Ultrasound
MRI
Multiple Urine and Blood Samples
STI Tests
X-Ray
Ultrasound Nerve Block

Here are 3 things that helped:
Diaphragmatic Breathing
Piriformis stretched and Butterfly Stretches
Going to someone who does body work (They released a contractured muscles on my bottom left corner back and abdomen)

There's too much to explain here, but ultimately I had confirmation from a Doctor in Europe who indicated that I had pudendal nerve entrapment.  I believe there is a strong connection between PNE and Hard Flaccid.  Again, all of our bodies are different, but I believe that some people that show Hard Flaccid symptoms may have pudendal artery compression.  This is causing bad inflow and outflow issues with the penis - like a kinked hose.  

Most individuals with PNE in many cases have their pudendal nerve and pudendal artery entrapped within the alcocks canal.  This is only one place of entrapment - I believe there are 4 places in all. The pudendal nerve gets entrapped between the sacrospinous and sacrotuberous or somewhere along the ischial spine. I don't know the total specifics of this, I do however know and have felt that compression by nearby muscles have created this issue. Posture plays a huge role as well.  My understanding is that the pudendal nerve gets compressed by nearby tissue and muscle, but also stays compressed because of muscle contracture.  In order to relieve the nerve you need to either do PT extensively and HOPE the muscle contracture along with the nerve is released. In many many cases - PT Seldom helps the issue. If PT is not helping and conservative treatments aren't aiding, then a surgical route is most often the approach that will be opted into. 

All in all - everything was coming back normal? Why do I have this pain then?

I have PNE. I'm certain. It's caused Heart-Ache and unnecessary mental instability. 

This is such a long road of unhappiness - I understand where everyone is at.  It's shitty.

I know many of you are against the idea of surgery - against the idea that you may have PNE - but I'm telling you. There's a percentage of you that show Hard Flaccid symptoms because of PNE.  Some of you are experiencing Thrombosis. This is also a bi-product of PNE.  

I believe a lot of us are confused because some of us show certain symptoms while others are virtually asymptomatic in regards to pain or sensation. If it is not PNE - its potentially compression of the muscles on vascular paths within the body. That said - I believe there is some kind of pudendal nerve compression because many of you talk about pelvic floor dysfunction and chronic constipation which are strong attributes of pudendal nerve compression. 

I am not the be-all end all. I don't know everything. I also know that sometimes Doctors aren't the answer. This all said - I want this fixed... for me, for you, for everyone. I am a risk taker and I'm tired of this shit. I am getting surgery in October - I will keep you all posted.

If you have questions please DM me and I will answer as best as I can.

P.S. look up muscle contracture on google

My Experience