So I developed a large painful bump on my shin and went to the doctors and he figures it’s EN. From what I’ve seen online and this subreddit though most look like bruises or really red and patchy and mine is just slightly red. Super painful and warm. Seems to swell more when doing physical activity or after been on my feet all day. Anyone else experience similar?
Posted Sep 27, 2022, 9:47 PM UTC
Yup your description is spot on for what I experienced. It also got worse after a shower because of the heat. The bump is actually the definitive thing, the bruised look often comes later.
It’s weird because I was actually told I’m just in clinical remission as well and otherwise am symptom free. Were you in a flare when you had yours?
It was one of the first symptoms of my very first initial flare, unfortunately. I also had joint swelling and pain. The gut issues showed up later on.
I've had EN several times, the last time in March after I had Covid. It was like you described and took IV steroids (I was hospitalized and needed surgery for an obstruction at the same time) for it to resolve. Basically, when I get EN I know I am in bad shape. My feet would swell and get so hot, sore, and itchy. I am sorry you are suffering.
I’ve had EN flares on my feet the last 5 months. And tips on how to treat them/get them to go away?! They keep popping up in other places
My rheumatologist prescribed me colchicine to use right when a flare begins and it was effective at limiting the flare, for sure. Maybe talk to your doc about that?
Thanks. I’ll bring it up. I’ve been on hydroxychloroquine for two months & have had two steroid packs and so far it’s not working 😞
I’m so sorry, I know how hard dealing with EN can be. I’ve had multiple big flares over the last decade. No known cause — just comes up randomly. I hope your doc can help you figure it out!
Yes, I’ve had chronic recurrent idiopathic EN for almost 10 years now — it’s EN.
Yes exactly like you described. It’s been a while but I don’t think it bruised until it was resolving. I needed prednisone to treat it. I couldn’t even put my leg in a downward position it hurt too much.
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