Boggleby

u/Boggleby



I’ve had PA forabout 15 years now. Treating with biologics now but during a bout with cancer I was on some heavy Prednisone. My skin got so thin that I sliced a 2" tear into my leg with my thumbnail putting on socks.

Im good now, not on steroids for years, but the PA is slowly winning the long fight. I might be willing to supplement with 5mg Pred. But not sure at what does the side effects kick in if yountake it long term.

Anyone have any experience at low dosagefor P/PA/ITP and side effects?

Thanks for any info/advice

33

r/usenet•

I’ve been using Usenet since before we had apps that assemble everything for us. But these days I’m approaching the “old fart” stage of life and in recent years I treat it like an appliance for the most part and don’t pay much attention to the inner workings anymore.

During the Black Friday sales, I grabbed the deal from Frugal because it had a lot of supportive comments here. I connected to every server they listed(including the new au and as servers), tested connectivity on each one at a time, including the bonus server. Then I toggled off my newsgroup ninja servers and took it for a spin.

In the several days since then my completion rates are horrid. When I do get completions, i

1630

r/DestinyRising•

Pretty new so forgive my ignorance.

Every time I run a heroic strike, the power requirement goes up for all characters. I’m playing on the character I like best now and none of my other characters can get close enough to catch up to that gear score so I can’t play them in heroic strikes.

Hopefully I’m just misunderstanding the situation and someone can set me straight. The heroic strike requirements are now significantly higher than when I started them.

19

r/whiteoutsurvival•

Iv searched and everything I find is vague and doesn’t explain the details well.

Let’s say that I start a crappy for a level 2 polar terror. It shows with a power of 1.1 million

My rally if my one team is 120k power and I see the rally cap of something like 400k

Is it that:

A) Only enough members can join to cap at 400k.
Or B) will having stronger folks result in more than the 400k that appears in screen. Pp

It’s wild because I’ve seen rallies both fail and succeed with the rally cap being lower than the polar terror value. And I can’t figure out how that makes any sense at all.

Every post I find regarding it mentions one thing or another but none explain how it all works.

12

r/Kiiroo•

Am I missing something or is the Connect not able to be used to record a script/activity/playlist for reuse?

It just seems to me that if it could record to the apps playlist while watching a video, you’d have the greatest tool ever for recording scripts to playback on the Keon. But when I look for any discussion about this I don’t find anything.

In my head the future of Keon would be having people able to record scripts for a video with ease, or preferred activities of their own and be able to post them to a Kiiroo script site for anyone to try. The crowdsourcing of recordings would crest significant value to encourage getting a Keon/onyx/toys

22

r/Hubitat•

I haven’t used a temperature sensor before and I was wanting to do a setup but before I go my usual route of buying things that don’t quite work as I expected, I thought I’d ask.

So primary questions are:

  1. What’s the best temp sensor to pair with the Hubitat?
    • Lower price is nice but it is what it is.
    • powered is preferred, does not need to be battery driven
  2. how often do they poll? For battery models, I’m assuming infrequent, but I can plug it in and would prefer a decent poll rate. 5 Min maybe or less?

Thanks for any advice

14

r/synology•

Howdy all!

The Setup

I have a DS418 Play that I set up some time ago and rarely touch as it quietly does it's job day after day.

I have a second NAS, a DS418(not play) that I was migrating some of the load onto. I wanted media server access to always be through a specific account so the account exists on both devices, lets call it Bob.

Bob is set up on the DA418 exactly the same in the User -> Permissions screen. Checked for read/write. to a specific share

The Issue

But when Bob connects, he only had read access, not write for the share.

  • Rebooted everything several times throughout this process.
  • Side by side compared Bob on both NAS and everything I can see they are identica
00

r/synology•

I have a need to use a windows version of a touch command to update file modified dates for files sitting on the nas (DS418play)

When I touch files locally it works like a charm. But when I touch files on the nas, windows reports the updated date/time and shows the updated info on the file. However, after 15 to 30 seconds, the files revert to the pre-touch time. If not when on the nas

I’ve done it hundreds of times trying to figure out what’s going on.

Any clues out there?

20

r/Kiiroo•

Curious if anyone has hands on and is familiar with the control.
Questions abound, as in:

Is it easy to record a set and the get that set loaded to your phone for use in the app?

How good is it at things like controlling the three depth indicators on the keon?

Can it differentiate between the speed of an up motion and then the speed of the down motion?

I saw one post about it basically existing but nothing sense?

Inquiring minds want to know.

10

r/homeautomation•

Desk Ventilation

PERSONAL SETUP

So the Mrs and a I are avid games. One of the pitfalls that there’s simply never enough under desk air flow to carry away all of the excess heat blown out of the pc cases. We have open pedestal desks (no drawer banks, just half-walls on the back and full on the sides.

My current plan is to cut holes in the back and sidewalks and add 220mm case fans to drive air flow under the desks. Tie those to a signee temp sensor stuck under the desk and plug the fans into a USB power source that is in turn plugged into a zigbee smart plug. Basic on/off based on temp under each desk.

Before I started ordering parts and cutting holes to mount stuff I thought I’d ask if there’s a better approac

37

I have Leukemia. Been treating it for years with my fantastic doc. This year my company switched to UHC as the carrier (arranged before the UHC stuff all came out last year) They kept cancelling my refills repeatedly with no notice and no reason stated.

They waited until I was out of meds and desperate then notify me that my meds are denied and I must take different meds with different risk factors.

I’m sitting here with no meds, about to start the high risk crash that comes from stopping the meds, while they bury my doc in requests to justify my meds and try to force him to switch me to meds that have higher risks but cost less

UHC is evil

446