Competitive-Golf-979

Alongside bloodwork based recs from my doc. I started talking Certrazine HCL 10mg daily a couple months ago, and it's caused some symptom ease. I know it's a histamine/MCAS thing moreso. I'm seeing specialists and having tests. It's been 5 years. I looked over some of the resources provided (shout out Mods! thank you!) and it seems most of what benefits us must be prescribed to have access. Anyone have anything OTC help? I'm in talks consistently with my doc about treatment and currently in a waiting season.

It's not a bad thing to be scared

Life will not be the same as it once was

The image of your future is adapting, perhaps begrudgingly, into a smaller, more malleable form

You now find great extacy in the beauty of daily things

... The vista beckoning you from the window

...The ability to bathe and change into clean clothes

... The continued efforts of those you love dearly, as they decide what your illness means for them

While your grief swells each coming season, realizing... it, too, will be like the last

Our loved ones need only surrender who they thought we'd become in the past

We are the ones still alive, at last

Discovering new joys where trifling things once dissolved

That's it that's the question. Please help, my Drs aren't.

Do y'all have any specific supplies or ways of doing it that make cleaning easier? Rn for me it's paper towels, multi purpose spray, then isopropyl alcohol sit for a few minutes then wipe up. I did only my sink in my small apartment bathroom and the thought of doing even just the room in one day feels too much. I have a cat and I know there's things like 'natures miracle' litterbox spray that you can just wipe away (I still rinse with wet paper towels)... Is there anything like this or specific way to clean that's less taxing? Perhaps cleaning more often would mean cleaning with less effort... same goes for everything with this disease.🫪🫣

Thought there was massive shit blockage but now internet plumbers say it's needing someone to come check it out. My bathroom is messy. I can't move all that shit away from the toilet in my small ass apartment and clean it and have them visit and then clean afterwards and still be able to do basic functioning tasks. No crazy problem just needs multiple flushes to flush right. Literally coated in sweat by the time I gave up pouring water from the bathtub in. Now no matter what I have to clean the tub and the toilet area at least disinfecting because my contamination worries are b i g. It was just a plastic cup being filled at the tub tap but I ain't getting germies everywhere ain't no way. Oh

Dear God,

I'm sorry for my body. I'm sorry for it's pain. I'm not sorry for me, or for you. I'm not sure quite who it is my sorry-ness goes through. I am very sure that something is wrong, and I do believe it will get better. It will get better. It. Will. Get. Better. When I say it more, does it become a prayer? I'm tired of praying. Is that alright? I'm tired of praising you when my body tells me to turn off the lights. I mean that literally, God. I have to lay in the dark. Some days all I can bear is to feel my heart beat in my chest. Even that feels so loud sometimes. I wish you would be louder. Perhaps I need hearing aids of some kind.

I hope they feel my absence, the potential I left behind

The feeling of what could have been, and how it now has died

There will be no funeral, no mourners, no grief

What happened, did so quickly, yet with the slowest pace indeed

I hope they wonder for me, my future, our past

The fabulous things I could've done, had things not slipped at last

Perhaps it was always decided

Even the day it began

Maybe I knew what was to come, but chose a made-up plan

It wasn't playing pretend- my love. my gifts.

So many things for which I wanted, never became much more than this

A foggy plan now waits for me

patiently

silently

I have been taken out of my own life, and offered another path

This

The physical pain the rest of the month is just about tolerable, but during my period... I could fight demons with my bare hands if I had the energy with how bad this shit hurts. I want a full hysterectomy and have for years now. Any of y'all had success with a doc allowing it? Idk if I want to keep my ovaries or not. Early menopause sounds awful but if it's inevitable why not get it over with while I feel like shit anyway idk.