Helpme2221

Let me tell my story a bit, I’m 19 with Ewings sarcoma got diagnosed about a month ago with mets on my spinal cord and lungs, got paralysed. I need advice which are the best hospitals in Europe and Turkey that are specialised in Ewings and extreme rehab because of paralysis. If you know any hospitals comment it, it would be very much appreciated.

Let me tell my story a bit, I’m 19 with Ewings sarcoma got diagnosed about a month ago with mets on my spinal cord and lungs, got paralysed. I need advice which are the best hospitals in Europe and Turkey that are specialised in Ewings and extreme rehab because of paralysis. If you know any hospitals comment it, it would be very much appreciated.

Bit backstory, I’m 19 diagnosed with Ewings Sarcoma 1 month ago, also became paraplegic because of sarcoma tough journey ngl. Did my first cycle of chemo and like 3 days ago my hair has started to shed, the being bald is not that big of a deal for me but like it’s just heavy shedding i don’t feel like it’s that much of problem as of now that i NEED to shave fully bald. My questions, When is best to shave? Does the shedding get worse? i’ve seen people lose nodules of hair, and What are yall stories with losing hair and when did yall shave?

Bit backstory, I’m 19 diagnosed with Ewings Sarcoma 1 month ago, also became paraplegic because of sarcoma tough journey ngl. Did my first cycle of chemo and like 3 days ago my hair has started to shed, the being bald is not that big of a deal for me but like it’s just heavy shedding i don’t feel like it’s that much of problem as of now that i NEED to shave fully bald. My questions, When is best to shave? Does the shedding get worse? i’ve seen people lose nodules of hair, and What are yall stories with losing hair and when did yall shave?

Bit backstory, I’m 19 diagnosed with Ewings Sarcoma 1 month ago, also became paraplegic because of sarcoma tough journey ngl. Did my first cycle of chemo and like 3 days ago my hair has started to shed, the being bald is not that big of a deal for me but like it’s just heavy shedding i don’t feel like it’s that much of problem as of now that i NEED to shave fully bald. My questions, When is best to shave? Does the shedding get worse? i’ve seen people lose nodules of hair, and What are yall stories with losing hair and when did yall shave?

Bit backstory, I’m 19 diagnosed with Ewings Sarcoma 1 month ago, also became paraplegic because of sarcoma tough journey ngl. Did my first cycle of chemo and like 3 days ago my hair has started to shed, the being bald is not that big of a deal for me but like it’s just heavy shedding i don’t feel like it’s that much of problem as of now that i NEED to shave fully bald. My questions, When is best to shave? Does the shedding get worse? i’ve seen people lose nodules of hair, and What are yall stories with losing hair and when did yall shave?

Bit backstory, I’m 19 diagnosed with Ewings Sarcoma 1 month ago, also became paraplegic because of sarcoma tough journey ngl. Did my first cycle of chemo and like 3 days ago my hair has started to shed, the being bald is not that big of a deal for me but like it’s just heavy shedding i don’t feel like it’s that much of problem as of now that i NEED to shave fully bald. My questions, When is best to shave? Does the shedding get worse? i’ve seen people lose nodules of hair, and What are yall stories with losing hair and when did yall shave?

Stage 4 Ewings sarcoma spread to spine (T7/T8) lost feeling waist down. Currently 1 month post op. Did first cycle of chemo and 20 grays of radiation. Anyone paraplegic with cancer or became paraplegic because of cancer that can give me any advice? I feel like chemo is 10 times harder just because i can’t move, how do you yall deal with it.

Stage 4 Ewings sarcoma spread to spine (T7/T8) lost feeling waist down. Currently 1 month post op. Did first cycle of chemo and 20 grays of radiation. Anyone paraplegic with cancer or became paraplegic because of cancer that can give me any advice? I feel like chemo is 10 times harder just because i can’t move, how do you yall deal with it.

I have stage 4 Ewings Sarcoma just finished my first round of chemo doxorubicin/ifosfamide, was rough got to get it cut short by a day because of serious fevers. Now that I’m done what are is some advice tips or tricks that yall have that i should use anything that comes to mind helps. I suppose the hair falling out is gonna start in a week time but that’s pretty much all i know, ive never felt better now when the fevers have stopped and feel like the hardest part is done but i know that ain’t it. Also diet plans, all of my doctors said i can eat anything i want just try blander foods and no fruits because they cause nausea but i don’t buy that i got to eat healthy to beat this shit. So any

I’m 19 got diagnosed with cancer Ewings Sarcoma a little less than 20 days ago, all started with mid back pain couldn’t sleep, went in for a lung biopsy woke up couldn’t feel my legs, had a emergency operation where they decompressed next to my spine t4-t9 (7cm primary tumor) vertebrae, the compression where it went between my vertebrae was on t7/t8 (2cmx2cm). Woke up couldn’t feel nothing under my nipples. I have a 4cm metastasis in my right lung and 3/4 2mm ones on my left lung, two days ago i finished 2 days of doxo/ifo chemotherapy, had 20 grays of radiation on my primary tumor (what’s micro left of it because they removed everything the could during the emergency operation MRI says my s

I’m 19 got diagnosed with cancer Ewings Sarcoma a little less than 20 days ago, all started with mid back pain couldn’t sleep, went in for a lung biopsy woke up couldn’t feel my legs, had a emergency operation where they decompressed next to my spine t4-t9 (7cm primary tumor) vertebrae, the compression where it went between my vertebrae was on t7/t8 (2cmx2cm). Woke up couldn’t feel nothing under my nipples. I have a 4cm metastasis in my right lung and 3/4 2mm ones on my left lung, two days ago i finished 2 days of doxo/ifo chemotherapy, had 20 grays of radiation on my primary tumor (what’s micro left of it because they removed everything the could during the emergency operation MRI says my s

I have stage 4 ewings sarcoma, currently paraplegic from my primary tumor that’s right next to my spinal cord, i did 20 grays of radiation, and as of last night i did my first day of chemo, the plan is 4/5 days of doxorubicin/ifosfamide, no side effects beside the ifo that made me feel a bit drowsy, drinking a lot of liquids around 5L(1.5 gallons). Currently feeling never better i know the real side effects start later and after a few more cycles of chemo when your immune system is shot. But do yall have any tips for me, any advice that i dont know about that i should watch out for especially with doxo/ifo regiment. Thanks to everyone reading this all, everybody’s contribution means a lot du

I have stage 4 ewings sarcoma, currently paraplegic from my primary tumor that’s right next to my spinal cord, i did 20 grays of radiation, and as of last night i did my first day of chemo, the plan is 4/5 days of doxorubicin/ifosfamide, no side effects beside the ifo that made me feel a bit drowsy, drinking a lot of liquids around 5L(1.5 gallons). Currently feeling never better i know the real side effects start later and after a few more cycles of chemo when your immune system is shot. But do yall have any tips for me, any advice that i dont know about that i should watch out for especially with doxo/ifo regiment. Thanks to everyone reading this all, everybody’s contribution means a lot du