StringAndPaperclips

u/StringAndPaperclips


r/cfs•

I came across some articles about fluid regulation issues in MECFS while researching related issue. I don't have POTS, but I've always had some form of orthostatic intolerance with my MECFS. When I finally got a specialist, she sent me to a cardiologist. Cardiologist said I was fine, even though I have the usual random weird symptoms, and have difficulty with standing blood pressure tests (I feel like I need to sit down immediately if I stand still for more than a couple of minutes).

So, it turns out that PWME have issues with fluid regulation. It has actually been a major symptom of mine all along. I always feel slightly dehydrated, drink loads of water and pee many times per day, but thou

1111