r/CMT

3.7K archived posts · Oct 2011 – Sep 2026

CMT

r/CMT

A subreddit dedicated to CMT (Charcot-Marie-Tooth disease) aka Hereditary Motor and Sensory Neuropathy. All types of CMT are welcome here, including HNPP.

Created Dec 11, 2010

3.2KMembers (last snapshot)

3.7KArchived posts

A subreddit dedicated to CMT (Charcot-Marie-Tooth Disorder) aka Hereditary Motor and Sensory Neuropathy.

Discussing, living, coping, news, science, the search for a cure. Meetups?!

More information and resources

General information:

About Charcot-Marie-Tooth Disease (CMT)

Charcot-Marie-Tooth Disease Fact Sheet

Charcot–Marie–Tooth disease (Wikipedia)

Charcot-Marie-Tooth disease (Genetics Home Reference)

Patient advocacy organizations:

The Foundation for Peripheral Neuropathy

The Inherited Neuropathies Consortium (INC) (URL not working as of 17.05.2020, looking for alternative).

Charcot-Marie-Tooth Association

Hereditary Neuropathy Foundation

Charcot-Marie-Tooth UK

Social Media groups:

CMTUS (Facebook)

Other information:

The Rare Diseases Clinical Research Network (RDCRN) Contact Registry

Academic literature search for CMT

CMT Treatment Report

Asian Oceanic Inherited Neuropathy Consortium (AOINC)

A podcast from the American Academy of Neurology featuring Michael E. Shy, MD talking about how clinicians diagnose CMT (starts at 10:44, ends at 22:42)

Non-English resources:

C-M-T Association in the Czech Republic (Czech)

ACMT-Rete per la malattia di Charcot-Marie-Tooth (Italian)

CMT Japan (Japanese)

CMT Friends Association (Japanese)

CMT-NET, an association of German clinicians specializing in the research and treatment CMT) (German)

CMT NORWAY facebook group (Norwegian)

Other communities

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