r/Cavernoma

325 archived posts · Jul 2021 – Sep 2026

Learn, connect, share, get involved.

r/Cavernoma

A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry. 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma. We welcome those who are diagnosed with cavernoma and their friends and family, and also those that are just curious.

Created Jul 13, 2021

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325Archived posts

A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.

1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.

Although this sub is in no way connected to: The Cavernoma Alliance UK! The Cavernoma Society! The Angioma Alliance! Or any other similar organisations, this a platform to learn about their conditions, share their experiences with others, and find ways to get involved.

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