r/MEAction

1K archived posts · May 2016 – Feb 2026

MEAction - Patient network for Myalgic Encephalomyelitis & Chronic Fatigue Syndrome ( ME / CFS ).

r/MEAction

We are an international network of patients helping Myalgic Encephalomyelitis & Chronic Fatigue Syndrome ( ME / CFS / SEID / PVFS / CFIDS ) activists do what they do - better. Reddit home of the #MillionsMissing campaign.

Created May 28, 2016

2.3KMembers (last snapshot)

1KArchived posts

####Filter Posts

[Announcement] (https://www.reddit.com/r/MEAction/search?q=flair%3A%27announcement%27&restrict_sr=on&sort=relevance&t=all)
News
Petition
Research
Article
Blog
Discussion
#MillionsMissing
Fundraising
Question
Video
Action
ME Stories
Audio
Document
Event
Help

MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis.

MEAction is not structured like a traditional advocacy organization. We are a platform designed to empower patient advocates and organizations, wherever they might be, with the technological tools and training to do what they are already doing – better.

We were founded with the belief that, while we may find it difficult to advocate for ourselves in the physical world, in the virtual world we can be an unstoppable force.

###Our Demands

WATCH NOW: What happens When You Have A Disease Doctors Can't Diagnose.

MEAction's Jen Brea At TED Summit 2016

#Please support the #MEAction Network:

###Join Us

###Volunteer

###Donate

###Shop

#Reddit's Medical Information Disclaimer

#####Please read our rules & guidelines section below before posting or commenting:

###Rules & Guidelines ###FAQ

#####And most Importantly:

Be civil: Remember the human and follow Reddiquette

#The #MEAction network

#Suggested Links

#MEPedia - A crowd sourced encylclopedia of ME & CFS
Unrest 2017 - ME/CFS Documentary
M.E Patient Stories - Share yours!
#MEAction image archive
STOP Graded Exercise Therapy Trials
[Compiled List Of Scientific Studies About Or Related To ME/CFS] (http://www.ronnieschuurbiers.nl/scienceforme/)
[ME Research UK - Database of Research Publications 1956-2016] (http://www.meresearch.org.uk/wp-content/uploads/2017/01/ResearchPublications1956-2016.pdf)
[ME Research UK - Database of Research Publications 2017] (http://www.meresearch.org.uk/wp-content/uploads/2018/02/ResearchPublications2017.pdf)
A-Z index of the most important research studies - Updated October 31 2018
Science For ME - M.E. community forum

#Please support Invest In ME with their current research:

###Support ME Research

#MEAction Fact Sheets

21 Century Cures Act Fact Sheet – presents the argument as to why US health authorities should fund ME at a level commensurate with disease burden.
Why ME patients are critical of the PACE trial – debunking the myth of the militant minority (For more resources see: PACE trial overview)

Related Communities

Support Communities

Support the subreddit

If you would like to collaborate with us on reddit please message one of the moderators:

###Message The Moderators

Note: All moderators of this subreddit are volunteers and the views expressed by them, unless stated otherwise, do not reflect that of the organisation.

Other communities

Reddit Rebuilt is an independent, non-commercial archive and is not affiliated with Reddit, Inc. Content belongs to its original authors.