r/iih

24K archived posts · Mar 2013 – Sep 2026

Intracranial Hypertension: A community for knowledge and support

r/iih

This is a safe, kind community for those living with Idiopathic Intracranial Hypertension (IIH), a rare disease where a person has a high level of intracranial pressure; to learn, connect, share experiences, and find support. Those who are in the process of being diagnosed, have been diagnosed, or have loved ones with IIH are all welcome. Older names that have been used include Pseudotumor Cerebri and Benign Intracranial Hypertension.

Created Mar 6, 2013

12KMembers (last snapshot)

24KArchived posts

Idiopathic Intracranial Hypertension is a rare disease that has no cure and very little research. This is a community for those diagnosed with the disease and for those looking to learn more about it. Older names that have been used include Pseudotumor Cerebri and Benign Intracranial Hypertension.

This community aims to help dispel myths about the disease and keep others informed. We are here to support each other. Feel free to post rants, scientific articles, comics, or just about anything, as long as it is related to IH or chronic illness.

For more information, or to join the IH Registry, please visit http://www.ihrfoundation.org/

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