r/vEDS

473 archived posts · Feb 2018 – Sep 2026

Vascular Ehlers Danlos Syndrome

r/vEDS

This is a community for people who have Vascular Ehlers Danlos Syndrome (or Ehlers Danlos Syndrome Type IV), are suspected of having vEDS, and their caretakers, friends and/or family. Share your stories, struggles, successes, and any vEDS related information here! This is not the place to ask whether or not you have vEDS. Please use other methods of research for that and talk to your doctor about whether or not genetic testing is indicated.

Created Feb 21, 2018

710Members (last snapshot)

473Archived posts

Please remember that only a doctor can diagnose you.

NOBODY HERE IS A VERIFIED MEDICAL PROFESSIONAL. It is best to avoid giving medical advice over the internet in general. Soliciting or giving medical advice is not allowed in this subreddit. Sharing your failures or successes with treatments is fine.

This subreddit does not allow for post asking for financial help. We cannot verify where the money is going and to protect all parties do not allow these posts.

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