chronic pain and fatigue

Hi all! i’m 23, recently diagnosed and have not been able to see a specialist yet. I’ve worked as a server at a restaurant for about a year now and i’m not sure if it’s due to my diagnosis that I am extra aware of the fatigue and pain i’m feeling or if the job is just extra hard on my muscles. There are days where my neck and shoulders are so stiff and sore, almost a burning sensation, and my skin feels extra sensitive. I also sometimes feel like Ive just hit a brick wall and become so tired. I’m wondering if anybody else experiences these and if they are related to FSHD. I would also love any tips on managing this if that’s the case, thanks!!!

Posted Jul 7, 2026, 7:22 PM UTC

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