r/MPN•
fatguybike

Based on high platelets, and being very dizzy for 6 months, I suspect ET. How do you guys manage the Dizziness? (Seeking Diagnosis + symptom relief)

Spoiler:question: SEEKING DIAGNOSIS
  • Age/Gender 41/m
  • Reason Your Doctor Suspects an MPN. Sustained Elevated Platelets
  • Available Test Results
  • How Long Your Blood Counts Have Been High since Sept that im aware of.

Back in Sept I went to a walk in clinic because the world was spinning and I could barely stay standing. My family had upper respiratory and I assumed I got something from them. I thought something was very wrong though. The Dr said I likely have BPPV or Labyrinthitis. The Dr said I need to drop weight asap. My BP was very high. I went out and got my blood work done so I know where I stood before I lost a lot of weight. Something I wish I did the last time I lost a lot of weight.

My platelets in sept were 531k. My GP didn't really focus on this since I was really focusing on how dizzy I was. He did say that I should get my blood tested again but honestly the dizziness was horrible and I wanted to get that fixed first and I completely forgot to get retested until yesterday. My Platelets came back as 684k and my Hematocrit went from 47% to 51% which threw a red flag too. I've been to two different ENT's, MRI's and CT scans to try to chase down this inner ear issue. I believe with pretty good certainty that I have ET.

With that said, how are you guys managing your dizziness? I've been trying to chase this down since sept!

also does donating platelets help with anything?

Posted Apr 18, 2025, 8:21 PM UTC

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