Almost 5 months of hell

Hi there! Fairly new to reddit and definitely new to IIH but I wanted to share my story and get any tips from people struggling with this! Almost 5 months ago I started having headaches on the daily, from right when I wake up to when I go to bed. I have a 6 month old, 2.5 year old, and a 5 year old and im a SAHM so I attributed it to stress. After about 2 months of just dealing with it I got annoyed and reached out to my primary where it took me 2 weeks to get in with him. He says it "sounds like a cluster headache maybe a migraine" so he put me on this blood pressure medicine hoping thatd kill my cluster headache, 3 weeks of misery goes by I message him saying its not working and I feel awful. Im dizzy im nauseous, I dont have HBP to start and now im lowering it? I hate this plus its doing absolutely nothing for my headache. He puts me on verapamil after much debate (he thought I should increase the HBP meds) and decides he'll put in a referral for neurology. Cool. Neurology calls me soonest they have is March 5th..2026. Not cool, whatever ill take it tho and hope the migraine medicine helps. Shocker it doesnt. So I go back to him like hey somethings not right im telling you its got to be something other then a headache and I beg for just even running blood tests. He finally gives in after telling me "Im not sure what you expect me to find" which fair enough it won't show much but at this point im desperate. He decides to put me on a antidepressant to help with my "most definitely a migraine" The next day, this is October 20th at this point, my head hurts so bad I go to the ER. They gave me a "migraine cocktail" that will "for sure knock your migraine out you'll need a ride home itll make you drowsy" it did not infect make me drowsy I drove myself home after they took a CT (it was clean) I literally started to feel like im going crazy like no one believes me and my primary is just tossing medicine at me, won't do any tests, just hoping one of the meds work so I went to a different clinic entirely not just location wise but company wise. This guy looks at me after my story and my plethora of notes of things ive done and tried for it and goes "honestly I dont think its a migraine at all but we can try this (muscle relaxer) or gabapentin" says hell send in for neurology in the entire southern side of the state and hopefully someone reaches out to me with a sooner date then March (my new appointment is January 27th) he runs more blood tests and I finally got someone to agree to a MRI which I knew at this point the CT was clean but ive almost convinced myself I have a brain tumor (5 months of googling your symptoms will do that lmao) I had my mri yesterday and I see in the notes it says "Right optic nerve sheath prominence and mild low-lying cerebellar tonsils are nonspecific, potentially just incidental but can also be seen with idiopathic intracranial hypertension." Which i have no idea what that means but great still sounds like they aren't sure what it is and now I have to wait until Monday to find out. I get a call today from the Dr who ordered the MRI saying hey you have intercranial hypertension i want you to go to the ER immediately, as soon as you can, so they can do some tests and see how it looks and you can get the ball rolling. Im thinking, "okay thats scary as hell but you know what my head hurts so freaking bad today im okay with answers and relief" Find a baby sitter for my kiddos, go to the er, get admitted, ER Dr walks in and says "this isnt an emergency get out of my ER" (more or less...she wasnt nice about it) So im like wtf? Im just doing what I was told....now im suppose to wait until Monday to figure out what that was about? Why would I be told hey go to the emergency room ASAP just to be kicked out ....I just want my head to stop hurting im so sick of this....thats my rant...thanks for reading if you made it this far lol. I just wanted to get it off my chest and I dont really have family to rant to.