Comfort items for newly bedbound, severe to very severe?
I also have hEDS, POTS, dysautonomia, AuDHD, etc if that matters/anyone can relate.
I'm considering a small weighted blanket or stuffie, migraine ice cap, towely bathrobe because I have severe temp dysregulation during/after a shower, shower stool, eye shades, popper or other fidget toys to keep my hands busy?
I have electrolytes, ice packs, electric heating pad, wearing prescription sunglasses inside, blackout curtain, ear plugs, bath wipes, stool at bathroom sink. that's the important part over if you want to skip to the bottom
My cognitive PEM is more distressing to me than my physical PEM right now and I shouldn't even be on here. I'm sometimes able to walk to the bathroom alone and I can roll around pretty freely in bed in terms of physical capacity right now.
Haven't newly triggered physical PEM in a couple of weeks except when I had my hair washed in an inflatable bath bowl thingy and then brushed. I have extremely thick butt length wavy hair, it took two hours, I'm looking for someone to come give it a big chop.
Any of these things I'm considering a yea or nay for you? Did I miss anything?
Posted Nov 16, 2025, 2:46 AM UTC