Update on Women's Health Study

Hi all, I am following up with an update on our study exploring women and AFAB experiences seeking diagnosis for endometriosis, migraine, dysautonomia/POTS, PMDD, and MCAS in Ireland. Original post linked below.

We received over 400 responses, and I just wanted to say thank you as I'm sure many of you took the time to complete the survey!

I'll be analysing the data and writing it up for publication in the coming months (and will of course share it here when its published), but in the meantime we've also launched a digital exhibition/awareness campaign on Instagram and TikTok sharing anonymous excerpts from the survey responses. The aim of this is to put these lived experiences into the public space, validate what so many have experienced, and highlight the impact of diagnostic delays, dismissal, and not being believed. Each week we'll be posting more quotes.

You can find the exhibition on Instagram and Tiktok:

https://www.instagram.com/disbelieved.dismissed.delayed?igsh=MXUyeGhwZTB4c2FqcQ%3D%3D&utm_source=qr

https://www.tiktok.com/@disbelieved.dismi?_r=1&_t=ZN-93QFVdHrhIo

Thank you again!

https://www.reddit.com/r/IrishWomensHealth/comments/1nvdq46/experiences_seeking_diagnosis_for_endometriosis/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button