r/iih•
CAYMANI

Pain returned after stents

Stents

Hello everyone, after 4.5 years of suffering with severe head pain I was finally referred to a neurosurgeon at Jefferson. After some testing it was decided that I was a candidate for bilateral venous sinus stents. I had my stents placed 1/22/26. The first 4 weeks were rough but after that I was pain free 90% of the time and the other 10% my head pain was mild to moderate. For about 3 months I was completely head pain free! I finally felt like I got my life back. However, the past 3 weeks my severe head pain has returned. I’m scared to live like this again. My quality of life was very poor and I’m terrified to have to live like that again.
Has this happened to anyone else? Went 3 months pain free and then the severe head pain returned. My neurologist suggested I take Ubrelvy and Ketorolac for 5 days and that I should feel much better but I don’t. I should mention I take Diamox. Any help, encouragement or sharing your own similar experience would be greatly appreciated.

Posted Jun 11, 2026, 2:36 AM UTC

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