r/CSFLeaks•
TS_Chick

Feeling defeated

I had my DSM done today, left side. And I was really hoping that they would find the fistula on the first scan. Especially since in my area there is only 1 IR who can do it and their standard of practice is to do it under anesthesia so the schedule coordination meant waiting 5 weeks for this one (I know, it could be way worse!!). And now I am worried I will end up waiting 5 more for the next.

It's extra disappointing because in addition to the suffering with the spinal CSF leak, I also have a tumor they need to remove from my low back and they are trying to coordinate procedures once they find the fistula.

I just mostly needed a little vent :( why are these buggers so hard to find!!

Posted Jun 26, 2026, 11:01 PM UTC

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