I posted this attached post a while back and I’m back for more advice.. so after this post I rebooked my appointment with the ophthalmologist neurologist and while waiting for that appointment, I went back to my normal optometrist. My optometrist is the only one who seems to believe what I’m experiencing and when I explained to her all of my symptoms, she brought up IIH.. I had already planned to bring it up to her, but I didn’t even have to.. she said that my issues are kind of out of her wheelhouse, but she knew I had the appointment booked with the neurologist so she told me to talk about it with her. I anticipated this appointment so much because I was so hopeful that I would finally get answers but when I explained to her all of my symptoms, she told me that I was fine. I told her that my optometrist suspected I might have IIH and she told me that none of my symptoms are symptoms of IIH. The symptoms include: headaches, ocular migraines, hearing my heart beat in my head/ ears, ringing in my ears and everything goes quiet for a few seconds, vertigo, floaters, blind spots, random flashing white light in my eye sometimes… I wish that I had advocated for myself more but I was so sick of everybody making me feel like I’m crazy so I just left and went to the car to cry. My vision keeps getting worse, my blind spots are getting bigger and I’m terrified that I’m going blind. I get double vision… I have a hard time reading the words on my screen. I’m not sure how to explain it, but when I’m reading on my screen, the line that I’m reading will be clear but all of the lines surrounding it almost look like they’re smudged on the screen? Or sometimes they look like they’re in italics. I was reading through other people’s posts in this group and relate so much to some of the images posted of what other people’s visual disturbances look like.. like I said in this post I made last year I have been to the ER multiple times because of my symptoms, I have seen two ophthalmologists, I have seen my regular optometrist several times and I have now seen an ophthalmologist neurologist.. the only person who has taken me seriously and not made me feel completely insane is my optometrist, but she has also told me that my issues are beyond her scope of work.. at this point I genuinely have no idea what to do. This has been going on for five years now and the worse it gets the more scared I am that I am going to be blind. My optometrist told me that the vision that I have lost is never coming back; she explained that it’s been gone for so long that those cells will have basically atrophied and died off, and there’s no way to regenerate them.. so the more vision I lose the more terrified I get.. I don’t know what to do because I feel like I’ve tried and tried to get answers and I get nowhere. (In Canada) 

Rant/ advice pls😪