Source
r/G6PD•
gabi7897571

G6PD deficiency and a hemolytic anemia

It took me years to discover that I was G6PDD. I had countless hemolytic anemia crisis, and it used to take me days to recover from. Now knowing the list of triggers I avoid it as much as I can and have a very normal life.

The two Products that make me recover from a crisis (never going away even with avoiding triggers) are

  • Hydration (very important) I buy rehydration packs (obviously without vitamin C and K) and always keep it on me just in case.

  • N-ACETYL CYSTEINE (NAC) This is a big one!a personal game changer When i do not feel good and I take this product, in a matter of hours I recover. You can get this in most of the vitamin store and a lot of pharmacy and sometimes supermarkets.

Obviously everybody is different and I am not a doctor and you should consult with him. But I have done a lot of research because my G6PDD is level is in the severe range Class 2 border Class 1.

I hope we can help grow awareness of this deficiency sometimes difficult to live with specially with all speculations of chloroquine for the COVID-19 and the potential reaction with G6PDD.( everyone reaction and tolerance will be different.)

Posted Mar 22, 2020, 1:59 AM UTC

174
wjgatekeeper•

What dosage of N-ACETYL CYSTEINE do you take and do you only take it when you feel bad? Have you tried a lower daily maintenance dosage?

1
gabi7897571OP•

I take the 600mg 1 or 2 times a day when I feel the hemolysis is here. I also get so urine test strips to see if i am in the danger zone. I have not tried a daily maintenance dosage like a 250mg but probably will.

2
Dininhk•

Just curious as to how you test the range of G6PDD that you have? My daughter has G6PDD, but I didn't know there was a range. Would be good to know, as I'd like to give her Vitamin C as a flu preventative/cure.

Thanks

1
gabi7897571OP•

It is done by a blood test requested by your doctor. Be very careful when giving her vitamin C if not NATURAL (from fresh fruits), depending on the severity of the deficiency it may produce a reaction.

1