r/G6PD

Worst bean in the world all my homies hate fava beans

For those that don’t know. Lebanese and Egyptians use fava beans to make falafel. Syrians and Iraqis use chick peas. You’re okay to eat it from a Syrian or Iraqi place but confirm beforehand that it doesn’t contain fava beans.

Hello, I've found a few threads on this sub asking about the pfizer vaccine. I'm from Singapore and they started vaccinations at the end of december 2020. I just got my first dose on Wednesday!

During registration and right before getting the jab I double-checked with the nurses if it was safe for people with G6PD and they confirmed that it was safe.

It's currently Saturday 3:22am and the only side effects I've had was soreness around the area of the jab (like any jab), and a slight fever of 37.2°C. Hope this helps!

I just read this article in The Guardian with some alarm:

https://www.theguardian.com/food/2023/jan/18/beans-in-toast-uk-should-switch-to-broad-bean-bread-say-researchers

There is no mention of G6PD deficiency and the potential dangers of this idea. Given how little awareness of G6PD deficiency there is in the UK, that is a bit of a concern, especially as fava/broad beans are never listed as an allergen anywhere.

Obviously this is just a research programme, but I have reached out to the journalist who said she was speaking with the researchers and would raise this with them

I noticed the buns had a new shiny texture to them . I looked at the ingredients and now they use fava bean in them. I ate 2. Hopefully I stay good if you use them probably time to switch.

As the title says, always do your research and look for peer reviewed articles published in reputable sites (NCBI, Pubmed, Nature, etc). Don't get your advice from random websites that just want to scare you into buying a list or subscription. Whenever in doubt, ask your doctor! :)

PS: an example from personal experience; foodwise, all documented clinical evidence points to just Favabeans being enough of a trigger for hemolysis (which happened to me); not booze, soysauce, chickpeas and all legumes - that I have been consuming all my life!

I accidentally bought gluten free flour instead of regular one to cook for my baby who has G6PD deficiency. Then, I checked the ingredients: fava bean flour!!! It’s a US based product, fava bean is getting way more popular in variety of things. Be careful guys.

My first hemolysis happened when I was 5. Because of my G6PD deficiency, I needed a full blood transfusion and barely survived.

•	When I moved to a foreign country at 18, G6PD followed me into every part of my life.

•	Every time I eat, I panic because G6PD makes me constantly fear another crisis. I’m scared something I eat will trigger hemolysis and that I might die alone in my apartment.

•	Living with that fear every day led to panic attacks, and eventually a full panic disorder.

•	I take medication for the anxiety, but even that becomes another source of fear because of G6PD, I worry every pill could trigger a crisis.

•	I have dental problems, but I avoid the dentist because I’m 

It took me years to discover that I was G6PDD. I had countless hemolytic anemia crisis, and it used to take me days to recover from. Now knowing the list of triggers I avoid it as much as I can and have a very normal life.

The two Products that make me recover from a crisis (never going away even with avoiding triggers) are

• Hydration (very important) I buy rehydration packs (obviously without vitamin C and K) and always keep it on me just in case.

• N-ACETYL CYSTEINE (NAC) This is a big one!a personal game changer When i do not feel good and I take this product, in a matter of hours I recover. You can get this in most of the vitamin store and a lot of pharmacy and sometimes supermark

Your G6PD can cause your A1C results to be artificially low. A1C is a measure of the accumulated sugar in your red blood cell over time. High red blood cell turnover and make your blood cell population young and lower the amount of accumulated sugar in it that is detectable by the test.

This happened to me and my Dr missed it except I was taking my blood sugar manually. He thought I was cured and that my high glucose in the test results was because I did not fast. But I did and I showed him the numbers I have seen tracking. Also I have had unusually low A1C's in the past. Diabetes doesn't magically go away. Took him a bit to see what I was talking about. American Dr don't know shit about G

I am a woman who is heterozygous for G6PD deficiency and I inherited it from my father.

I had an uncle who died at age 2 in the early 1960s in the middle east. The symptoms my father remembers his brother had were lethargy and red urine. The doctors at the time suspected Hepatitis, and wanted him airlifted to a hospital in the capital city, but there was a storm that prevented the plane from coming, and sadly my uncle died.

My father said that at the time, my grandmother was being treated for malaria, so I wonder if maybe my uncle got into her medication.

When I had a hemolytic crisis, my urine was also red, so that made me think that he also had G6PD deficiency. I guess G6PD deficien

As the title says, I received my first dose of the Pfizer vaccine on Thursday (UK) and besides some soreness in my arm (feels like it's bruised), I had no side effects!

Happy to reply to any questions!