Source
r/RetinitisPigmentosa•
GrapeDust

Afterimages.

Hello and thanks for tyt to read this.

I suffer from a condition that is called Visual Snow Syndrome. The most annoying symptoms of this disease are, without a doubt, the afterimages, they drive me absolutely crazy. That, along with extreme sensitivity to light, bad contrast representation, pattern glare and double vision.

What I wanted to ask was that if people with RP experience these type of issues, especially afterimages.

If this post is not suitable for this subreddit, my apologies.

Thank you.

Posted Apr 8, 2022, 8:24 PM UTC

811
bongunk•

Nope, but I do get lots of flashes, especially going into a dimly lit place after being somewhere bright. Makes it impossible to see anything and lasts for a good 30s at the least. Also sensitive to bright light and struggle in high contrast environments.

5
GrapeDustOP•

Yup, I have adaptation issues to light, also.

Ty for answering!

1
RichD1011•

sensitivity to light, bad contrast representation

These are the only ones that sound familiair to me, but i can imagine having afterimages are really annoying to have.

3
GrapeDustOP•

Yup, incredibly annoying.

How about static? Like seeing through a phone with a high iso.

1
Maximum_Bear8495•

I’ve got double vision often because of my strabismus (common condition to have along with RP), light sensitivity and VS too. Any chance you into psychedelics? After images sound like HPPD (NAD)

2
GrapeDustOP•

Nope, no psychedelics.

Afterimages are present in both VSS and HPPD, which are pretty much the same thing, only that you get HPPD from drugs and VS from whatever other sources. I’ve gotten mine from Covid.

How about you? Were you born with VS or acquired it along the way?

2
Maximum_Bear8495•

Always kinda happened to me and got worse with time. Was worried I had HPPD for a while cause I did fuck around with psychs but my experience seems to be different from those with HPPD and those with RP. It also wasn’t a sudden onset which is more like HPPD. Now I just have light sensitivity and light snow. I couldn’t tell you how to deal with afterimage but if you need tips for the rest I’ve got plenty for using computer screens and such

1
GrapeDustOP•

Thank for your offer, but I don’t have a problem dealing with this stuff. It’s just incredibly annoying but it is what it is.

The reason why I posted this topic was because I wanted to see if people struggle with after images as well.

1
Major_Confection3240•

I do not have visual snow anymore but, I have some double vision as my eyes don't focus well, severe light sensitivity and light flashes

2
GrapeDustOP•

Thank you for replying.

I deal with those issues as well. Have you found anything that helps?

2
Major_Confection3240•

no not really i just use low light on my phone and use polarized sunglasses outside

2