GrapeDust

I went to my neurologist today and he said some interesting things in regards of my symptoms.

He said that my POTS might be related to the fact that some micro blood cloths are blocking some very small arteries in my brain, some as thin as a hair follicle, and to keep the blood flowing the nervous system pumps more blood in order to oxygenate the regions that have improper circulation. Also said that the risk of stroke is rather minimum. It's rather unpleasant but the body itself does the best it can to regulate and keep itself alive.

In regards of treatment he said that he believes that the medicine that will be able to eliminate the blood cloths will also have a huge succes in treating

I do not condemn VSI's efforts to make light on this actual syndrome, or whatever it is. Some scientists from them have a few strong points, I can't deny that and I was really curious to see what they would have to say, like prof. Owen White, Joanne Fielding or prof. Goadsby. Seems they had other affairs, though.

What is the most pissing off thing about them, is that they basically try to get some $ out of anything, that would be the first thing and the second is that the communication and their M.O. are made like they are addressing to a bunch of idiots, not people that suffer. That really pisses me off, by saying that you will organize a summit and all that you is put 3 people in a roo

Hello and thanks for tyt to read this.

I suffer from a condition that is called Visual Snow Syndrome. The most annoying symptoms of this disease are, without a doubt, the afterimages, they drive me absolutely crazy. That, along with extreme sensitivity to light, bad contrast representation, pattern glare and double vision.

What I wanted to ask was that if people with RP experience these type of issues, especially afterimages.

If this post is not suitable for this subreddit, my apologies.

Thank you.