At the end of my rope

I care for my mother who suffers from autoimmune issues and arthritis amongst other things, has to use a walker, etc (I'm 32). Before we moved in together 4 years ago we had a bit of a volatile relationship but lately it has just been too much to deal with. She is incredibly demanding and I am so burnt out and so out of patience that we end up fighting and arguing constantly.

The past year has been especially terrible - she had seizures and ended up in the hospital twice. Delusions, confusion, etc. Things are better now but the worst thing is is that she refuses to believe me when I tell her a lot of the stuff that happened.

I feel so resentful and just....stalled out in my life. I feel like I'll never have a partner, never get back to having fun with friends, never have a normal life. I look at my peers and I feel so depressed. Can anyone relate? Or share tips on how to cope and think more positively? I find myself just drinking myself to sleep every night just to numb everything.

Posted May 9, 2022, 11:24 PM UTC

2521
shudbpaddling•

I think it's often wonderful when people will take care of family members if they actually want to share a home with them. I've read amazing stories of willing self sacrifice to this end. I am not, however, a person who feels that a person, particularly a young person in the prime years for finding a partner and creating their own family - should sacrifice that life (and their own future) to care for this family member.

You may not be qualified to deal with your mother's medical and mental issues. This living arrangement may not be her best interest, either. If I were you I would seek out advice from a social worker (your local hospital will have at least one, with a resource list), council for the elderly, or the office of your local representative (for resources).

17
abl540OP•

Thank you for your response. We've attempted therapy but honestly, there's so many health issues and so much insane family history that the time taken to give the necessary background information before we can get to the real work is enormous.

Thank you for the suggestions as well. I hadn't thought of a social worker and honestly didn't even know a council for the elderly was a thing that exists.

9
shudbpaddling•

It's the National Council on Aging. https://www.ncoa.org/

I'm probably your mom's age and I would absolutely NOT want my kid to sacrifice their own beautiful life for mine. Nope.

14
abl540OP•

That's a wonderful and charitable attitude to have, and thank you again for the resource.

My mother unfortunately immediately goes back to the "I provided you with such a great childhood" argument the minute I get frustrated with anything she does.

2
bleepbloop9876•

I relate sooo much to the resentment and jealousy that you're describing. I am fortunate to be married to a wonderful partner, but my social life is nonexistent, I've had to drastically reduce my work hours, I can't travel and have had to cancel plans, and I can't currently plan to have kids. It all feels so so unfair. I don't know what the answer is and don't really have any advice, but just know you're not alone and your feelings are valid <3

4
abl540OP•

I really appreciate this response - and you are so lucky to have a supportive partner. I do periodically have the time to socialize, or date, or whatever - but 99% of the time I just use it as an opportunity to relax and recharge. Between this and COVID my social battery is super low, lol. But again it's good to get some affirmation that there are others out there who have this level of empathy :)

1
Snarfoo_•

Hey,

I've been in some dark places due to caregiving as well. I also took care of my mom for 5 years before she passed away recently. I want to let you know that what you're doing for her is a noble thing. There are not a lot of people who can do what you do for your own mother. I know about the horrible burn out you can feel and the resentment it causes.

I, too, would look at my peers taking their lives to where they want to, while feeling stuck and angry at my situation and asking WHY it has to be my family that suffers like this. I am very familiar with trying to find the answers at the bottom of a bottle.

Please, friend. Take care of yourself. It's okay to not love the situation and the circumstances before you. But be kind to yourself. Imagine your best friend was going through this, are you going to destroy that friend with alcohol and horrible thoughts of guilt and shame? No. You are probably going to be compassionate and kind and be there for them. You have to do that for yourself.

Practice what self-care you can. Invest in yourself in other means. Unfortunately, this path of suffering on both you and your mom's part is going to be part of your story and legacy. Life is not a marathon and good things will be sent your way. Thank you for being selfless, but it's completely okay to be selfish with your time when you can.

I found that exercise helped the most. You want to get your body feeling good. You gotta control what you can right? Try your best to stay off the liquor. Trust me... for me it was liquor and weed. it really destroyed me further and did not do anyone around me any good as well..

Try your best to sacrifice temporary and instant gratification for long term game. You gotta think about the war, not the everyday skirmishes

​

hope this helps.

4
abl540OP•

This really resonated with me. I have cut down the alcohol since I made this post, but yeah, it's the alcohol and weed for me as well. And I know you're right about the exercise. I played tennis competitively growing up and then other life circumstances led me to just stop working out, playing sports, etc in my 20s, and here I am in the worst shape of my life.

I struggle with the motivation, I guess. I'm perpetually exhausted emotionally/mentally, so that when I do have the time the last thing I want to do is go for a walk or do whatever else. It sounds like you can relate and have overcome that, but I guess for me I'm at the stage before.

In any case, I agree with what you're saying and your compassion really means a lot. Thank you.

1
AscendingIvy•

I'm 34 and I care for my elderly parents. My mom has Stage IV Lung Cancer that has spread to her brain, and my dad has a whole bunch of health issues and is currently in remission from Prostate Cancer. I feel everything you said about being angry about your life being stolen from you. I've got bad and good coping mechs too. Sometimes I drink a bit, sometimes I eat my feelings, sometimes I get to play my guitar, or play videogames with my friends. Hell, I actually got my brother who has done next to nothing to help to stay the night twice so I could go camping overnight and another night for a concert.

I get bad advice from people all the time. Why don't you do online school? Why don't you get a work from home job? They don't get that there is no time, no extra brain function, to work or study. Who wants to be on a conference call/ Zoom when your elderly parent is screaming for help, no one.

Learning how to play guitar and to do repair work on guitars has been a godsend. It gives me something to look forward to and learning to play has been something I always wanted to do. I'm not that good because I don't get a whole lot of time to play, but right now I'm at least at the level of punk rock power chord strummer. I really suggest you find something small that you've always wanted to do and try it.

Before my caregiving situation got super intense/before COVID, I had started keeping a bullet journal. I'm able to work on it less than I was before, but being able to use it as a planner and a habit tracker has been helpful to me. I also do pages for things I want to do in the future like planning for overseas trips, if I won the lotto, how I want my dream house, etc.

I also have been working on my room and making it really nice. Even if I can't be in there that often anymore. At least I feel like I have a sanctuary.

Also feel free to DM if you need to.

3
mascunning•

I'm sorry you are having to go through this. I'm there with you. Similar feelings that mirror your own in your last paragraph. My only advice is to keep thinking about the end game and the selflessness that you have. You are doing this to help someone that despite the ups and downs you've had, she is dear to you...or at least the idea of her is. The reality can be totally different. I'm a little further along in life than you. Mom is 71 but healthy with just some partial parapalegia that has improved. I honestly feel like I'm in this for the long haul and am wasting what remains of my viable dating years (44yo divorced male). At least you have a lot of years left for your situation to change or get better at least.

Do you have options for alternative caregivers that would allow some personal time? Even on a temporary basis for dates or socializing at all? Can she be on her own at all? Just don't know the whole situation. My mom can be alone but I'm mostly attached to her every 3 hrs to keep her moving and toileting, cooking etc.

2
Skitilludie•

I’m just now starting to integrate self care. This issue has to be forced into your life without hesitation, otherwise our caring nature for our needing loved one will overwhelm. My life disintegrated completely. I’ve given up all social/dating activities. No longer am I invited to group travel destinations. I’ve cancelled so many dates because of my moms needs I’ve walked away from women. And they me. I’ve allowed her needs to excuse mine at all costs. I’m 53M. Mom is 86 with failing health but a strong mind. Hospital visits to the point of everyone knowing each other by first names🤦

I am just beginning to take steps for me. I’m taking some short 2 day getaways. Reducing alcohol because it only fed my 24/7 anxiety. Reaching out more and making myself more accountable to myself and others. Meaning no cancellations cause of her needs unless serious emergencies. So, you at 44 MUST do what you require to maintain your personal frame. Your goodness is not measured by your own personal misery. Care givers are unsung soldiers for good and you do yourself, and your mom, no good if you lose yourself in the process. Be well👍

2
Skitilludie•

I’m living your situation today too. I’ve tried senior center for support groups and other outlets but none exist. I’ve had to force myself to take time away. It’s my only option as I’m also a sole provider. I’ve allowed my anxiety to fully control my entire day along with alcohol and I’ve decided this cannot continue. Take steps for self care. I’m starting too and the guilt I thought I’d suffer from didn’t manifest(thankfully)👍 Be well

2

Was taking care of my dad for a brief, but very intense short period of time.

When Dad had memory issues I showed him proof of what had occurred.

Also, explained the plot of the movie, "50 First Dates" to him as it appeared he forgot things primarily after sleeping. This seemed to make sense to him and made things less stressful when he did happen to forget events.

2

Thank you for sharing.

I'm a caregiver for my mother who also has RA and autoimmune issues. And heart problems.

I'm 34f, divorced, with 3 amazing little kids. We were doing amazing in a little house I had and then things turned.

My dad, whom I loved dearly and was close to, passed away after fighting cancer for a year and taking care of him on hospice. He spoiled my mother and did everything for her. Needless to say, after his passing she didn't know how nor could, sometimes I think she can, but again she's not used to it, doing anything on her own besides some super light house keeping.

My siblings are useless, family disappeared after the initial "Your dad was such a great man" sentiments, and well, my kids and I moved in to help my mother as she ages and help with the house.

It's horrible. I've become a gardener, pool lady, cleaning lady, her advisor, her punching bag when things don't go right, mechanic, cook, chauffer when she just "can't" whatever that means...

I will inherit the home and assets when she passes but at this point I don't want anything but my little house with my little family.

She complains about the kids feet prints on the floors, their backpacks stacked behind the door, and asks and manages everything I do in my personal life.

It's exhausting. And if I try to establish boundaries. O lawd. I'm ungrateful, uncaring and selfish. Insensitive. Everything under the sun.

I also work full time and have my own health issues and things to handle with my kids.

Either way. In the long haul here too.

Goodbye social life, any kind of life 😩 I just miss my dad. He was amazing.

2
abl540OP•

Thank you all for your helpful and heartfelt comments and advice. I've been dealing with a lot of stuff the past few days so I haven't had time to respond (I will be at some point), but it does feel good knowing that others can empathize. I don't really know anyone in my real life that has gone/is going through something similar, and while there is sympathy, it's hard to discuss because people don't really understand.

1
LowGradePlayer•

God will reward you.

Focus on your long game.

-3
HeresAnUsernameFamily Caregiver•

I struggle a lot with this whole thing of "God will reward us because we're doing the right thing".

I care for my mother who spent her entire life caring, first for her treatment resistant schizophrenic father+high functioning alcoholic mother, addicted brother and his abandoned daughter, had kids and cared for her mother with COPD and CHF. When they all passed/moved on and she was excited to live her own life, she got hit with metastatic breast cancer, bed bound in a year with uncontrollable pain... God must've forgotten about her reward.

I don't feel like I can expect to be rewarded on earth because I absolutely can't count on it and I also think I deserve to live a life despite of my family illnesses. I don't want to be happy just after I die.

Sorry for the rant, it just makes me sad :(

16
mascunning•

You don't need to be sorry for anything. I'm not a believer (anymore...former youth pastor). It can be sad, but I believe in doing good for the sake of sound mind. And, obviously, for the sake of doing good. Karma if you will...though I don't specifically believe in that either. I do it for my boys. So they can see that you do good because it is the right thing to do. I don't make a spectacle of it and I don't ask for reward. I love my mom. I love my kids. I don't ask that anyone repay my love.

But...your situation is different from mine and from OP and everyone else. I don't envy your mother's position or the trauma that was passed on to you from her suffering. But I do hear how difficult it can be and I'm sorry for that. My best to you!

5
LowGradePlayer•

By reward I mean the sense of righteous you can claim by your unselfish actions.

-1
abl540OP•

I find this sort of sentiment...insulting, honestly. I do this out of a sense of obligation and because I feel it is the right thing. I don't need any god or scripture to dictate my actions, and I don't expect any reward in an afterlife. Life is a random set of circumstances that you have to adapt to and cope with, and this particular circumstance I am clearly not coping with well.

1
LowGradePlayer•

Ok then.

I don’t care about your situation in the least as I have my own elderly parent.

Feel better?

1