Horrible vibrating feeling ("body buzzing"/internal tremor)
Hello! I am not diagnosed, but I've got a neurologist appointment set up to look into testing. I have recent new muscle weakness, and lots of other autoimmune problems.
Does myasthenia gravis cause that horrible internal vibration sensation? I know symptoms are supposed to get worse with activity. My muscles usually get extra weak after activity, but today I had an extra active day, and now it feels like I'm vibrating inside. It feels HORRIBLE.
Is this a myasthenia gravis thing? Or something else anyone is familiar with?
Also, any advice about testing? If I've only had symptoms for a month or two, is that too soon to test?
Thanks!
Posted Dec 31, 2022, 8:00 AM UTC
The only symptom of MG is muscle weakness that gets worse after use. The feeling you describe could be related, but not an actual symptom. I had plenty of problems peripheral to MG that were troublesome to me but weren't considered part of the MG. Like tremors, nerve entrapment in my wrists and ankles, tingling in my feet, stiff muscles, and general fatigue.
It is not a diagnostic symptom for MG, but it could be that your body has this sensation when it gets weak. I hope you get this figured out soon. It sounds miserable.
I got an AChR antibody test ordered by my PCP before I even saw a neurologist. This is the most common type of antibody (85+% of cases) and just a simple blood test, so it's often the first test for MG.
Tests for MG are very specific and are only done when a provider suspects MG. You're not going to stumble upon a positive while doing "general testing", so make sure your neurologist knows you want to be tested specifically for MG. Even neurologists can be unfamiliar with MG. If possible, you'll want to see neuromuscular specialist.
Thank you so much for your advice, very helpful!