chronicallyalive

Hi everyone! Unfortunately, my daughter seems to have brought home a cold. She got better within 24 hours but it’s hitting me harder. I’m taking Sudafed which is helping some but I’m worried that my immunosuppressant isn’t helping the situation. Today is Sunday so I can’t message my rheumatologist until tomorrow so I thought I’d ask what y’all do/have been told to do.

For reference, I’m on 75mg of Imuran twice daily (150mg total per day).

Thank you!

Hi everyone! My daughter is 2.5 years old and is in OT weekly. Yesterday, the OT told us that she has a retained Moro Reflex and sent me an article about what this means but some of the article seemed pretty unscientific and while I’m trying to do my own research, it’s proving a bit difficult.

In case it matters, my daughter was born at 33w3d. She has since been diagnosed with Pediatric Feeding Disorder (has a g-tube), Apraxia of Speech (is in speech therapy as well), and required a few months of PT before she was able to walk around 18 months old.

She has a well visit scheduled with her pediatrician this coming week but I was hoping some of yall might have some good resources on this to

Hi everyone. I recently got on Medicaid (a few days ago) because I'm on SSI. I am an adult and according to what I'm reading online, adults are limited to just six prescriptions per month. I'm on 18 prescriptions at this time and cannot reduce this. If the government acknowledges that I'm disabled to the point I can't work, how can they then limit me to just six prescriptions? Does anyone know if I would be exempt from this limit or if I'm expected to pay out of pocket for the other twelve prescriptions I need?

Thank you!

My baby girl was born at 33w3d and was in the NICU for 31 days but recently turned one (ten months adjusted) and we had her one year old appointment with her pediatrician recently. Needless to say, it didn’t go as well as I had hoped.

Prior to this appointment, she was doing great development wise but now the doctor is concerned that she’s not standing, cruising, or anything similar and we’re being referred to PT. Her fine motor skills are great but she’s behind in the gross motor skills, I guess.

She also has to switch from NeoSure to a formula for toddlers since she’s still not on the growth chart and a good amount of her calories still come from formula. I’m doing my best with introdu

Hi everyone! I could really use some advice regarding WIC. I live in Oklahoma.

I am the mom of a seven month only girZl who was born at 33 weeks and who had IUGR. She was 3 lbs 1 oz at birth and spent 31 days in NICU but she doing great now!

When we were discharged from NICU, the neonatologist gave us a WIC exception form saying that she needed to be on NeoSure and WIC didn’t give us any problems with that. I guess that’s why I’m surprised they won’t work with us now.

My daughter’s pediatrician gave us the all clear to start baby foods at her six month appointment. He specifically told us to buy stage one foods, so we did.

Imagine my surprise when the receipt printed and we discovere

Hi everyone. I’m not sure what info is relevant to my question so I’m sorry if this is long.

I have a six month old baby girl who was born at 33 weeks and spent a month in the NICU. She also had IUGR and was only 3 lbs 1 oz at birth. Today she is 11 lbs 11 oz and four months adjusted. She has no delays that we’re aware of and her pediatrician is pleased with her development. She is formula fed and has been since coming off of TPN in the NICU and currently takes 3-4 oz every 2-4 hours.

Ever since she came home, my husband and I have taken shifts where he’ll sleep in the bed while I stay in the living room with the baby and then we switch off. She started sleeping through the night around

Hi everyone. I’ve just found this sub so this is my first post. I’m 27 and this is my first pregnancy. It took just over a year for me to conceive and I have been high risk the entire time due to having lupus but until 03/16, things were going well. I had a routine appointment with my MFM that afternoon and I told the nurse that I had experienced bleeding after using the restroom two days prior but that it stopped quickly. At this point, I was 19w4d. The doctor opted to do an exam and informed my husband and I that I was 3cm dilated. I was admitted to the hospital, got a cerclage the next day, and went home two days after that. Since then, I’ve been seeing both my MFM and my OB every other w

Hi all! I (26F) am currently almost 12 weeks pregnant with my first baby. I’ve been diagnosed with narcolepsy for over two years now.

I’m currently taking 60mg of Vyvanse daily (I had been on 60mg of Adderall XR but my pharmacy can’t obtain it anymore). My sleep doctor confirmed that staying on the Vyvanse is okay but my OB isn’t super thrilled with me staying on it.

Don’t get me wrong, he’s not being rude or anything but always asks if there’s any way I could stop it. Unfortunately, I don’t feel I can. When I’ve tried to go without stimulants in the past, I get incredibly depressed because of how tired I get and how nonfunctional I am because of that. It makes my life so much harder and

Hey everyone! I'm currently looking for a drugstore/cheaper foundation and would love to hear what y'all recommend!

I generally prefer to have a drugstore foundation in my collection in addition to a more high-end foundation. Right now, I’m loving Anastasia’s Luminous Foundation (if that helps give you some idea of what I like in a foundation).

I used to use Covergirl’s Clean Whipped Foundation but that's been discontinued and I've been on the hunt for something new ever since.

I want a liquid, medium to full coverage product that is <$25 or so.

Thanks in advance!

I was driving by Woodland Hills mall last week and noticed a couple of weird circus tent looking things set up in the parking lot. It almost looks like it could either be for a carnival, fair, or circus. I drove by again last night and it's still there. Does anyone know what it is? It's driving me batty not knowing lol

Hey everyone! Until about six to nine months ago, I rarely used B&BW products aside from PocketBacs but I’m slowly becoming more and more obsessed with them- especially their WallFlowers. That’s where my question comes in.

Oftentimes a day or two after I change the scent, it becomes much harder to smell. My immediate thought is that one WallFlower for an 850 square foot apartment is just not enough but I can’t find any recommendations on this. I don’t want to buy another if it won’t help the issue but I don’t know what to do.

This feels like such a dumb question lol I’m sorry but I do appreciate any opinions or ideas you may have!

Hi everyone! I’m really hoping this community can help me out because I’m having a tough time with this.

Here’s my situation:

My husband is Bipolar II and his primary doctor is prescribing his Latuda (which was originally prescribed by a psychiatrist before he moved here) ,which is a drug that we know alleviates most of his symptoms but it does NOTHING for his anxiety. The primary doctor prescribed Buspar and Hydroxyzine but nothing is helping. The doctor knows and we know that he needs to see a psychiatrist but his insurance is making that more difficult than I’d prefer.

My husband is employed through Hillcrest so he can only see Hillcrest doctors or doctors in private practice. He ca

Hey everyone! Yesterday, I had a really unfortunate and kind of upsetting interaction with the pharmacist at Walmart when I was filling my narcolepsy meds (10mg Ambien and 60 30mg Adderall XR). I had called to see why it was taking so long for it to be filled and the pharmacist started interrogating me like “what is this for? Why do you need a stimulant and a sleeping pill?” I tried explaining narcolepsy to him but it honestly sounded like he didn’t believe me. Since yesterday was Saturday, I couldn’t call my doctor’s office but the way this pharmacist talked was that he won’t fill it again so I’m just confused on what to do for next month.

Like, I’ve filled ambien and Adderall there befor

Hey everyone! I was officially diagnosed on the 29th of October and my testing showed that I’m falling into REM in five minutes but I’m waking up, on average, 16 times/hour. I also slept during all the naps for the MSLT.

My sleep doctor has me on Adderall ER 30mg which is great for around 8 hours...problem is, around late afternoon, I’m once again very symptomatic. I like the Adderall but obviously taking an extended release drug at 4:00pm is not great and from what I’ve heard, regular Adderall is in short supply in my area (Tulsa). I’ve previously failed Provigil, also.

Also, does anyone have any advice on sleeping medications? As I’ve previously stated, my testing showed I’m waking up

Hey everyone! I wanted to make this post because I’ve been seeing a lot of posts in Facebook groups for lupus patients asking whether or not we’re to get our flu shots or not. I know there are a lot of differing opinions on this but being that this year’s flu season is happening in the middle of a pandemic, I figured it was extra important to get the word out on what we need to do to stay as safe and healthy as possible!

This is a great article from the Lupus Foundation of America. One really important piece of information in this article is that infections are one of the leading causes of death in lupus patients- t