Chronic sufferer from around age 10 (now 30), attacks usually come in bunches ie. If I'm lucky enough to have 10 days free, I'll probably average one a day/every other day for the following week or two. As you'll all know, it's beyond depressing. Has also cost me my last two jobs despite doctors notes etc. as I'll typically have to leave work a few times a month which has essentially made me unemployable despite my best efforts.
While varied, my attacks seem predominantly ocular, and in the last 1/2 years my photosensitivity has become so bad I wear FL shades almost around the clock, otherwise phone screens, the sun, any direct light can be an instant trigger - it's become essentially disab
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